The Mastectomy I Always Wanted: Erica Campbell’s Mission to Help Others and Change the Breast Cancer Narrative

“Always look for the helpers. There will always be helpers.”

Advice from Mr. Rogers’s Mother

“If you look for the helpers, you’ll know that there’s hope.”

–Mr. Rogers

Over my life, I have found my dearest friendships and connections, and the people I admire most are those who genuinely care and lean into their life experiences and skills to help others. This is the tribe that Terri and I adore being surrounded by. The same theme applies to the work that Don and I do with Invenio Advisors and our #TwinzTalk initiative.

Last night, August 21, 2024, Terri and I had the privilege of attending the virtual book launch celebration for Erica Neubert Campbell‘s “The Mastectomy I Always Wanted.” The book was released on August 20th and is available on Amazon!

We ALL have talents and life experiences that make it possible for us to contribute to others. We can choose to care and be a helper.

Erica has the experience of losing her mother to breast cancer and is a breast cancer survivor. She is on a lifelong mission to help others who are faced with traveling the road of breast cancer. As Erica noted, [paraphrasing] “Cancer is a club no one wants to belong to, yet if needed, the club includes caring and compassionate people dedicated to helping each other.” She has dedicated her life’s work to helping others fighting cancer (a long-time Special Love board member and camp volunteer, and now Executive Director for the Pinky Swear Foundation, helping families fighting the financial strains of childhood cancer) and now courageously shares her firsthand battle with breast cancer, determined to help others become more empowered in their journey and find hope for moving forward.

Terri and I have known Erica for over 20 years. She is kind, determined, and relentlessly focused on helping others. Read her book and consider a friend taking your hand during difficult times, listening, helping, and letting you know you are not alone. You are not alone. On her website, Erica notes:

As a woman dedicated to my work and family, I’m normally quite private. Yet, my vision is to help women and caregivers facing a mastectomy to be confident in their choices, free from fear, and see a better future.

This resonates deeply with me. When our son, Ryan, was diagnosed with childhood cancer (leukemia) in 1996, Ryan, Terri, daughter Olivia, and I were thrown into the cancer community. I also lean toward being more private, but I joined Terri in our now lifelong commitment to helping others who are enduring the path of childhood cancer. Our determination is fierce, and we applaud and thank Erica for the help and hope she is bringing to others by sharing her story!

In March 2021, Terri published The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, with the unstoppable mission of “Helping one person, one family, at a time.” Erica, in her unique way of articulating meaningful thoughts, shared this beautiful, heartfelt quote that is included in the book:

“In a tough situation, few people wake up every morning and say, ‘I’m going to be resilient today.’  Most people under extreme stress wake up with heavy hearts but with a small quiet voice that tells them never to give up. Resilience is listening to that small inner voice and finding people and organizations to help you slowly turn up the volume.”

Upon completing Erica’s book, I paused and reflected with gratitude on her willingness to document and share her story to help others. On the resources page of her website, she shares many quotes that have inspired her. I leave you with two to consider:

“What do we live for, if not to make life less difficult for each other?

-George Eliot

“Once the storm is over, you won’t remember how you made it through. You won’t be the same person who walked in. That’s what this storm is all about.”

-Haruki Murakami

Call to action… many of us have been, or will be, touched by cancer. “The Mastectomy I Always Wanted” takes you through one person’s journey, sharing the physical and innermost mental challenges experienced. Erica shares her reality and provides actionable thoughts and tips, such as how she shared her news (“I Hate Telling You This in an Email“), “Erica Health FAQs,” and “Top Ten Tips to Prepare for a Mastectomy.” While she writes from the perspective of her experience with breast cancer, the book’s reach will benefit anyone touched by cancer. Please do yourself a favor: buy this book, read, share, and discuss it with those in your life who may benefit. Please.

Erica, congratulations on publishing your book! Thank you for the help and hope you are bringing and are going to bring to so many breast cancer patients, caregivers, medical personnel, family, and friends. Your book is a critically important resource, spoken with vulnerability and courage from your heart. Thank you!

August 13, 2019 – TwinzTalk Bill and Don Tomoff at Special Love Camp Fantastic with Erica Campbell
Sweatpants and Coffee Image – Sharing Your Story Helps Others
August 23, 2024 – Terri and Bill Tomoff with book The Mastectomy I Always Wanted

Special Love – Childhood Cancer Support Charity

Share what inspires you and provides purpose in your life… #TwinzTalk#SpeciaLove

One of my most significant opportunities and joys is serving on the board of directors for Special Love, Inc. – an organization that helps children and families fighting #ChildhoodCancer. My relationship with the organization’s mission is very personal; my son Ryan and our family have been on the receiving side of their services since 1997.

Please check out this 36-minute No Politics #Podcast for a great discussion with Executive Director Jan Bresch. She explains so well the various programs of support that make an incredible difference for families. Looking for a well-organized and highly rated #charity to support? Look no further.

In the podcast, a portion focuses on the thoughts of a previous camper and now counselor, Julia Jones. The link to the complete reflection is in the comments – Julia does a magnificent job articulating the bonds and magic that Special Love camps create.

Here is a brief excerpt from Julia’s blog thoughts:

“𝘔𝘢𝘯𝘺 𝘱𝘦𝘰𝘱𝘭𝘦 𝘭𝘪𝘷𝘦 𝘵𝘩𝘦𝘪𝘳 𝘭𝘪𝘷𝘦𝘴 𝘴𝘦𝘦𝘪𝘯𝘨 𝘥𝘢𝘳𝘬𝘯𝘦𝘴𝘴 𝘦𝘷𝘦𝘳𝘺𝘸𝘩𝘦𝘳𝘦 𝘵𝘩𝘦𝘺 𝘨𝘰 𝘦𝘷𝘦𝘯 𝘵𝘩𝘰𝘶𝘨𝘩 𝘵𝘩𝘦𝘺 𝘭𝘪𝘷𝘦 𝘪𝘯 𝘵𝘩𝘦 𝘭𝘪𝘨𝘩𝘵. 𝘉𝘶𝘵 𝘐 𝘩𝘢𝘷𝘦 𝘮𝘦𝘵 𝘤𝘩𝘪𝘭𝘥𝘳𝘦𝘯 𝘸𝘩𝘰 𝘩𝘢𝘥 𝘥𝘢𝘳𝘬𝘯𝘦𝘴𝘴 𝘱𝘶𝘴𝘩𝘦𝘥 𝘶𝘱𝘰𝘯 𝘵𝘩𝘦𝘮 𝘢𝘯𝘥 𝘧𝘳𝘰𝘮 𝘵𝘩𝘢𝘵 𝘱𝘭𝘢𝘤𝘦 𝘴𝘵𝘶𝘣𝘣𝘰𝘳𝘯𝘭𝘺 𝘪𝘯𝘴𝘪𝘴𝘵 𝘰𝘯 𝘴𝘦𝘦𝘪𝘯𝘨 𝘵𝘩𝘦 𝘭𝘪𝘨𝘩𝘵.

𝘐𝘯 𝘵𝘩𝘦 𝘦𝘯𝘥, 𝘐 𝘥𝘦𝘴𝘤𝘳𝘪𝘣𝘦 𝘤𝘢𝘮𝘱 𝘢𝘴 𝘵𝘳𝘢𝘯𝘴𝘤𝘦𝘯𝘥𝘦𝘯𝘵 𝘢𝘯𝘥 𝘣𝘪𝘵𝘵𝘦𝘳𝘴𝘸𝘦𝘦𝘵. 𝘐𝘵’𝘴 𝘢 𝘸𝘦𝘦𝘬 𝘰𝘧 𝘵𝘩𝘦 𝘮𝘰𝘴𝘵 𝘧𝘶𝘯 𝘺𝘰𝘶 𝘤𝘢𝘯 𝘩𝘢𝘷𝘦: 𝘳𝘪𝘥𝘪𝘯𝘨 𝘩𝘰𝘳𝘴𝘦𝘴, 𝘤𝘢𝘯𝘰𝘦𝘪𝘯𝘨, 𝘱𝘭𝘢𝘺𝘪𝘯𝘨 𝘥𝘳𝘦𝘴𝘴 𝘶𝘱, 𝘣𝘶𝘪𝘭𝘥𝘪𝘯𝘨 𝘢 𝘴𝘱𝘢𝘤𝘦𝘴𝘩𝘪𝘱, 𝘷𝘪𝘴𝘪𝘵𝘪𝘯𝘨 𝘢 𝘧𝘢𝘳𝘮, 𝘳𝘪𝘥𝘪𝘯𝘨 𝘢 𝘮𝘰𝘵𝘰𝘳𝘤𝘺𝘤𝘭𝘦, 𝘸𝘪𝘯𝘯𝘪𝘯𝘨 𝘮𝘰𝘳𝘦 𝘱𝘳𝘪𝘻𝘦𝘴 𝘢𝘯𝘥 𝘴𝘵𝘶𝘧𝘧𝘦𝘥 𝘢𝘯𝘪𝘮𝘢𝘭𝘴 𝘵𝘩𝘢𝘯 𝘺𝘰𝘶 𝘤𝘢𝘯 𝘦𝘷𝘦𝘳 𝘧𝘪𝘵 𝘪𝘯𝘵𝘰 𝘢 𝘴𝘶𝘪𝘵𝘤𝘢𝘴𝘦, 𝘴𝘪𝘵𝘵𝘪𝘯𝘨 𝘢𝘳𝘰𝘶𝘯𝘥 𝘢 𝘤𝘢𝘮𝘱𝘧𝘪𝘳𝘦, 𝘸𝘪𝘵𝘯𝘦𝘴𝘴𝘪𝘯𝘨 𝘮𝘰𝘳𝘦 𝘤𝘰𝘮𝘱𝘭𝘦𝘵𝘦 𝘢𝘯𝘥 𝘶𝘵𝘵𝘦𝘳 𝘴𝘪𝘭𝘭𝘪𝘯𝘦𝘴𝘴 𝘵𝘩𝘢𝘯 𝘰𝘯𝘦 𝘱𝘦𝘳𝘴𝘰𝘯 𝘤𝘢𝘯 𝘩𝘢𝘯𝘥𝘭𝘦, 𝘢𝘯𝘥 𝘮𝘢𝘬𝘪𝘯𝘨 𝘵𝘩𝘦 𝘬𝘪𝘯𝘥 𝘰𝘧 𝘧𝘳𝘪𝘦𝘯𝘥𝘴 𝘺𝘰𝘶 𝘸𝘪𝘭𝘭 𝘯𝘦𝘷𝘦𝘳 𝘧𝘰𝘳𝘨𝘦𝘵. 𝘊𝘢𝘮𝘱 𝘪𝘴 𝘧𝘶𝘭𝘭 𝘰𝘧 𝘵𝘩𝘦 𝘬𝘪𝘯𝘥 𝘰𝘧 𝘱𝘦𝘰𝘱𝘭𝘦 𝘸𝘩𝘰 𝘸𝘪𝘭𝘭 𝘥𝘰 𝘸𝘩𝘢𝘵𝘦𝘷𝘦𝘳 𝘪𝘵 𝘵𝘢𝘬𝘦𝘴 𝘵𝘰 𝘮𝘢𝘬𝘦 𝘢 𝘤𝘢𝘮𝘱𝘦𝘳 𝘴𝘮𝘪𝘭𝘦….

𝘈𝘵 𝘵𝘩𝘦 𝘣𝘦𝘨𝘪𝘯𝘯𝘪𝘯𝘨 𝘰𝘧 𝘵𝘩𝘦 𝘸𝘦𝘦𝘬, 𝘣𝘦𝘧𝘰𝘳𝘦 𝘵𝘩𝘦 𝘤𝘢𝘮𝘱𝘦𝘳𝘴 𝘢𝘳𝘳𝘪𝘷𝘦𝘥, 𝘛𝘰𝘮 𝘉𝘢𝘬𝘦𝘳, 𝘚𝘱𝘦𝘤𝘪𝘢𝘭 𝘓𝘰𝘷𝘦’𝘴 𝘧𝘰𝘶𝘯𝘥𝘦𝘳, 𝘨𝘢𝘷𝘦 𝘶𝘴 𝘴𝘰𝘮𝘦 𝘢𝘥𝘷𝘪𝘤𝘦: 𝘍𝘢𝘭𝘭 𝘪𝘯 𝘭𝘰𝘷𝘦 𝘸𝘪𝘵𝘩 𝘢 𝘤𝘢𝘮𝘱𝘦𝘳. 𝘐𝘵’𝘴 𝘯𝘰𝘵 𝘩𝘢𝘳𝘥 𝘵𝘰 𝘭𝘰𝘷𝘦 𝘵𝘩𝘦𝘴𝘦 𝘬𝘪𝘥𝘴. 𝘛𝘩𝘦𝘺 𝘤𝘭𝘪𝘮𝘣 𝘳𝘪𝘨𝘩𝘵 𝘪𝘯𝘵𝘰 𝘺𝘰𝘶𝘳 𝘩𝘦𝘢𝘳𝘵 𝘢𝘯𝘥 𝘴𝘵𝘢𝘺 𝘵𝘩𝘦𝘳𝘦.”