On January 23, 2024, on Facebook, I shared gratitude for Dr. Aziza Shad for her unparalleled care to our family and all patients and families under her care. I was inspired by a Susan Cain post titled Seven things my father taught me, by example. Her father was a doctor and the list of seven things he taught her was heartwarming and points we should all take to heart. Point number five immediately reminded me of Dr. Shad:
“If you happen to be a doctor, take care of your patients – really take care of them. Study medical journals after dinner, train the next generation of physicians (my father kept teaching until age 81), spend the extra hour to visit the bedside of your patients in the hospital. (Here’s a letter from one of those patients, which we found after my father passed away. He never showed us these things while he was alive.)”
Susan Cain Image – Patient Letter to her Doctor Father
The gratitude I shared in my Facebook share was:
“When I read Susan Cain’s post on Substack, this point, and the letter sent to Susan’s father, it inspired me to intentionally pause and be grateful for Doctor Aziza Shad.
Since 1996, Dr. Shad has been at our family’s side guiding and caring for Ryan Tomoff through his #ChildhoodCancer wars and beyond to monitoring the late effects of his treatments through the years.
The image above IS the essence of expertise, care, and compassion that Dr. Shad has brought to our family and every patient and family blessed to be a recipient of her care.
Please read Susan’s full Substack post and my wish is you can share your #gratitude with someone who made a forever impact in your life 🙏❤️.
Dr. Shad, thank you… the words shared by a patient, in Susan’s post, are beautiful. The Tomoff family carries these sentiments for you:
“How do I start, where do I begin to express my feeling of gratitude. appreciation to a [doctor] that has compassion, knowledge, and the kindest doctor… I had the pleasure to have in our lives.
Your caring, right from the heart, your kindness to always lead us in the right direction. We never thought to get a second opinion. Whatever you advised was good enough for us. BECAUSE YOU CARED, TRULY CARED….” “
Please prioritize 35 minutes to hear Dr. Shad’s perspective on treating her patients and their families. She cares deeply about all whom she is entrusted to care for. In the pediatric world, the child patient and the family must be considered to achieve the optimal outcome of curing a child. Aransas does a beautiful job guiding the conversation, and the entire podcast was an inspiring listen.
In the interview, Dr. Shad discusses why she chose pediatric cancer as a specialty, the founding of The Aslan Project dedicated to pediatric cancer in Ethiopia, and her mission to be accessible 24 hours per day, seven days a week! She is a godsend to our family. Listen in and be inspired – may we all approach our lives and careers to make the most meaningful difference we can.
I recently had a conversation with a friend in an MBA program who was advised by a classmate to lower the bar and focus more on soft skills. While I agree that real skills are critically important, I strongly disagree with the suggestion to lower the bar on learning. My twin brother Don and I are passionate about personal development and relentlessly encouraging others to bring their best selves to the world every day.
This commitment to excellence was solidified for me when my son Ryan was diagnosed with leukemia at age two in 1996. Dr. Aziza Shad, Ryan’s pediatric oncologist, came into our lives and guided us through an incredibly difficult journey. We had to completely trust Dr. Shad and her team to save Ryan’s life. A critical part of that trust was the expectation that she and everyone involved in Ryan’s care was dedicated to bringing their absolute best knowledge, judgment, and effort.
While most of us don’t hold others’ lives in our hands on a daily basis, I believe we should demand the same level of excellence from ourselves in whatever work we do. I owe this to Dr. Shad and the many professionals who exemplify this commitment. Ryan is thriving 27 years later thanks to their dedication and skill.
Dr. Shad’s example has inspired me to always strive to be my best and help others with the knowledge and skills I’ve gained over my lifetime. My wife Terri has also been moved by Dr. Shad’s encouragement to share our family’s story in her memoir. I hope others find inspiration in this message to never settle or get complacent, but to continually learn, prepare, and contribute your talents to the fullest. The world needs you at your best.
Full Original Writing
My twin Don and I embrace a theme in our careers and lives: “Take what you do seriously. Do not take yourself seriously.“
Recently, I had a conversation with a friend in an MBA program, and a classmate suggested, “You are taking the MBA too seriously. You should lower the bar and improve your soft skills.” This friend happens to be a spectacular human being with real (prefer term vs. “soft”) skills that I wish I possessed. I agree that we all must understand the critical importance of real skills, yet a suggestion to lower the bar on learning through the MBA curriculum content? NO.
Don and I are all-in on personal development, and we relentlessly encourage others to be serious about continually learning and bringing their best selves to the world every day. Please be serious and do your best with all learning opportunities you encounter. We must be our best and bring our learning and talents to the world!
“To give anything less than your best is to sacrifice the gift.”
—Steve Prefontaine
“Lowering the bar” means accepting that we can get by and succeed with less effort. We don’t need to be at our best. This sounds crazy to contemplate, doesn’t it? In my world, I expect the best from myself and those I interact with. Let’s pull the thread on this idea to make a compelling and obvious point – in the medical profession, for example, are we accepting of a doctor who has lowered the bar and is not bringing her best talents to serve patients?
On October 17, 1996, our family’s life was forever changed when my son, Ryan, was diagnosed with cancer – Acute Lymphoblastic Leukemia (ALL) at the age of two years and two months. My wife Terri, and I, were stunned, scared, and had no concept of how we could move forward. On Saturday morning, October 19, 1996, Dr. Aziza Shad came into our lives carrying a protocol requiring our authorization for treatment to commence on Monday, October 21, 1996. Dr. Shad gently and caringly stepped through the protocol stages that would require three years and two months to complete and answered our questions. In order to save Ryan’s life, we had no option other than to accept and authorize the protocol.
We quickly understood a few core facts:
We had no control over a complicated childhood cancer world.
Dr. Shad and her team in the pediatric oncology world at Georgetown University Medical Center were our hope for saving Ryan’s life.
We had to trust Dr. Shad completely and partner with her while relentlessly advocating for Ryan.
Part of our trust in Dr. Shad and the medical community was our expectation that she and everyone involved in Ryan’s care was dedicated to staying current and relentlessly preparing to bring their best knowledge and judgment to Ryan and the countless patients whose lives depended on them. Let that sink in – isn’t this what you pray for when you put your trust in your doctors? While many of us are not saving lives on a daily basis, why would we accept less than our best when we live our lives personally and professionally? I have many limitations, but dedicating myself to continual learning, preparation, and bringing my best skills and effort to those counting on me is something I demand of myself. I owe this in honor of Dr. Shad and the many professionals who bring the same commitment to their lives every day.
We are blessed to have Ryan thriving now 27 years later, and Dr. Shad at his and our side guiding his follow-up care. Dr. Shad’s example of expertise, care, and compassion has solidified my determination to bring my best every day and help others with the skills and knowledge I have earned throughout my lifetime.
Terri Tomoff and Dr Aziza Shad – The Focused Fight
I will continue with future posts about Dr. Shad, where I will share the foreword from the book and other sentiments that speak to the incredible doctor and human being that she is.
To close this post, I hope you find inspiration to do everything in your power to be the best person and contributor you can be in your choice of work and how you carry yourself through each day of your life. Do not settle, get complacent, or “lower the bar.”The world needs your contribution!
Terri Tomoff’s passion for quilting took flight in 1989 after taking a class in Ohio. Over the past 35 years, I’ve witnessed her quilting expertise evolve from hand stitching to using a long-arm machine. Terri’s primary love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts.
Her dedication to quilting and sharing joy with others soared when she joined the Southern Comforters Quilt Guild in 1998. Terri’s colorful creations took center stage as the guild’s featured quilter in 2012. Quilting provided solace during our son Ryan’s battle with leukemia, a time she refers to as “Manufacturing Sunshine.”
Inspired by a quilt Ryan received during his 2004 bone marrow transplant, Terri spearheaded an initiative for the guild to donate lap quilts to childhood cancer patients. The beneficiaries now span from Georgetown University Medical Center to hospitals in Baltimore, Ethiopia, Puerto Rico, and even families affected by the 2023 Maui fires. Terri has also created quilts to raise funds for charities supporting children with cancer.
Beyond her charitable work, Terri generously gifts quilts to family and friends. Olivia, Ryan, and I treasure the t-shirt quilts she’s made, commemorating special moments in our lives. Terri’s commitment to continuous learning and finding better ways to create her quilted works of art is awe-inspiring.
I marvel at the extensive “body of work” Terri has built through quilting, just one facet of her multi-talented life. Her tireless dedication to family, friends, and passions is superhuman. Terri, thank you for manufacturing sunshine and generously sharing your gifts with the world.
Full Original Writing
Terri Tomoff loves quilting and everything that goes along with it…the hunt for beautiful fabric, learning continuously, the creative art of quilting, and the camaraderie of sharing her love of the craft with like-minded people. In 1989, she took a quilting class in North Olmsted, Ohio, and the fuse was lit. Over the past 35 years, I have had the gift of having a front-row seat to witness the development and refinement of her quilting work.
Today, her primary quilting love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts for family, friends, and customers. Her quilting expertise has evolved from hand quilting in the 1990s to using a full long-arm quilting machine to accelerate her work once the creative design is completed. Yet, her quilting passion goes far beyond the business side of her efforts. Her love of quilting and sharing the joy with others took off in 1998 when she joined the Southern Comforters Quilt Guild in Bowie, Maryland.
“Quilting consumes me.” Quote from Terri when the local newspaper featured her after she was selected as the Featured Quilter for the 2012 Southern Comforters Quilt Show. The text of the article:
March 8, 2012
Crofton-West County Gazette
Quilting Woman’s Passion
“Inspired by Betsy Ross and the bicentennial, Terri Tomoff took on her first fabric project in junior high, when she crocheted an outline of the original 13 colonies for a school project.
She was instantly intrigued by the material arts and has since created more than 200 quilts.
As the featured quilter for the Southern Comforters Annual Quilt Show, Terri’s colorful creations will take center stage at the show, which will be held March 24 and 25 at C. Elizabeth Rieg School in Bowie.
Terri started quilting as a young adult after taking a sampler quilt class in her home state of Ohio but put her hobby aside to focus on her marriage, children and career. Soon after moving to Crofton in 1996, Terri’s 2-year-old son Ryan was diagnosed with cancer and that altered her course even further. When Ryan was able to start pre-school, Terri met a fellow mom who was a member of the Southern Comforters Quilt Guild and invited her to join.
“That was in 1998 and I haven’t missed too many meetings since then,” said Terri. “Quilts consume me.” The quilting guild gets together twice a month to hone their skills, share ideas and serve the community.
Terri said that during her son’s nine-year battle with leukemia, she started making and donating quilts to sup-port cancer research and the medical centers that treated Ryan. “Instead of donating money, I made quilts that were then raffled off,” she said.
Terri also made more than 200 quilt bags gifting them to everyone from the doctors and hospital staff to the parking attendants.
At the upcoming quilt show, 30 to 40 of Terri’s quilts will be on display.
One of her favorites, which will be featured at the show, combines varying shades of solid pink and yellow fabrics and a complementary floral fabric.
“I love that quilts have a dual purpose since they are designed for both beauty and comfort,” said Terri. “I also love to see the joy in people’s faces when they receive a hand-made quilt and I think it is an honor to receive one. They are a labor of love – you just can’t knock one out.”
Terri said that she was humbled to be selected as the featured quilter for this year’s annual show and that she looks forward to continuing to color the world with her quilts.”
March 8, 2012 – Terri Tomoff Featured Quilter – Article in Crofton-West County Gazette
Terri embraced the quilting community and her love of quilting with fervor. Everyone should have the gift in their life of a hobby or passion that brings out their creativity and desire to improve and add value to the world. Terri found this with quilting. Her dedication and growth in the world of quilting is inspiring to all who know her. She wants to contribute to bringing joy and comfort to others with each lovingly created quilt.
Ideas are Born
Manufacturing Sunshine
Terri often tells how the quilting process helped soothe her and brighten her days at Georgetown Hospital when Ryan was an inpatient for his leukemia treatment protocols. Many long days and weeks were spent in the hospital from late 1996 through 2004. A makeshift station would be set up in Ryan’s hospital room, and when she could, Terri let her mind work with the creative side of piecing together fabrics that involved bright colors. Years later in 2017, she would reflect back and refer to those times that she was “Manufacturing Sunshine.” This is now the title of her website blog page and a theme we hold close to our hearts in our family.
March 2017 – Ryan and Terri Tomoff with her Manufacturing Sunshine Quilt
Community Quilts Bringing Comfort to Childhood Cancer Children
In late October 2004, when Ryan was admitted to the PBMT floor 5200 at Duke University to begin his bone marrow transplant process, he received a quilt incorporating blank green and blue blocks for nurses, family, and others to write notes to Ryan. I remember discussing with Terri, “This quilt is a tremendous gift for the patient and the family. They are being seen and know that people care.” The act of this gift of a lap quilt brought comfort during a time of extreme concern and stress.
March 21, 2024 – 29-year-old Ryan Tomoff with Quilt provided at Transplant in November 2004
When we returned to Maryland in 2005, Terri inquired about the possibility of the Southern Comforters Community Quilts charitable initiative, including lap quilts to Georgetown Hospital (where Ryan was treated when we were home in Maryland) to be given to newly diagnosed childhood cancer children. The idea was warmly embraced, and Terri was leading the effort of providing quilts to the Georgetown Pediatric Oncology Clinic! A beautiful idea noted at Duke University inspired a movement in the Washington DC region. In 2015, Terri discovered and shared with me the concept of Post-Traumatic Growth. Terri shared this in her blog from 2019. We were excited to have a defined term for our emotions and desire to make a difference for others chosen to travel the path Ryan, and our family were on.
The Soothing Power of a Quilt Expands
In addition to donating quilts to Georgetown Hospital, Terri led the Southern Comforters to share the comfort internationally. She knew firsthand the comfort of a thoughtful gift that a lap quilt could bring to a child fighting cancer and their families. She was a force of nature determined to leverage her love of quilting to help others.
The beneficiaries of Terri’s and The Southern Comforters Quilt Guild efforts, over almost 20 years, now include:
A touching moment happened with a quilt recipient from a family who lost their home in the Lahaina fire, as noted in point 5 above. A donated quilt had the quilter’s name on the back of the quilt, and the recipient sent the following lovely message via Facebook Messenger. Terri shared in her blog:
“After our guild meeting this past week, Joan approached me with a big smile and told me she had something special to share. Her quilt pictured below was given to a family that found her through Facebook and recently wrote her this lovely message:
“Wanted to say Hi and Aloha! I lost my home in the Lahaina fire on Maui. I was fortunate to pick out your quilt (UFO Challenge), and I just wanted to say a heartfelt thank you!””
In addition to the quilt donation efforts above, Terri has also created quilts for auction or has raffled quilts to benefit charities focused on efforts in the fight against childhood cancer. Charities benefited include:
Coordinating her t-shirt quilt business and the incredible charity initiatives shared above, can she make other efforts to spread her talents and love of quilts into the world? The answer is a resounding YES! Oliva, Ryan, and I have been the recipients of t-shirt quilts that we treasure, countless “baby quilts” have been gifted, and then she completes special projects for gifts (i.e., Tote Bags) and even tackles unique customer projects that showcase her broad spectrum of talent and creativity in the quilting world!
Terri is a continual learner and embraces “finding a better way” to be more effective with her quilting efforts. Her mission is to build space for the creative aspect of quilting, which she loves. Whether contemplating a collection of t-shirts, a charitable effort, or other unique projects, she experiences joy in creating a work of art that can be a lifetime gift to someone. The recipients of her art are often stunned at the beautiful work she delivers!
Within our family, Olivia, Ryan, and I all have t-shirt quilts that Terri lovingly made for us from activities that have defined a memorable aspect of our lives. My two quilts embrace my love of sports and competitive distance running memories. Olivia has a collection of memories from her competitive soccer years, and Ryan has a Special Love Camp Fantastic theme and sports memories.
June 2020 – Ohio University, Distance Running, and Other Sports Memories
I am thrilled that Terri found the art of quilting and savor the joy, purpose, and fulfillment it has brought to her life and the lives of others. Her talents are a gift to the world and she shares generously!
While writing this #CelebratingOthers, I marvel at the “body of work” that Terri has built with her quilting. Then, reflecting more broadly, I remind myself her quilting is only one aspect of her full, robust life. Terri is a sister, spouse, Mom, a dear friend to many, and is talented and dedicated to her life passions. The same commitment she brings to her quilting goes into everything she does. The tireless dedication to her family, supporting my efforts, and caring for Olivia and Ryan are superhuman! She is also the author ofThe Focused Fight, a memoir of Ryan’s wars with 3x childhood cancer and 2x adult cancers over the past 27+ years.
Terri, thank you for all you do for me, our family, and everyone you come in contact with through your quilting, writing, and sharing your passions with the world. Indeed, you are “Manufacturing Sunshine” for yourself and others!
On December 3, 2023, I gifted my twin brother Don my unpublished memoir Double Vision: Seeing Life Through Twin Eyes. The book led with advice and life lessons we have learned through our careers in business and working closely with each other – as only a twin could do. Directly from the book, I share the following:
Book Back Cover Blurb
In collaboration with ChatGPT, the back cover blurb for the book sets the context of the gift I have received by the good fortune to share my life with a twin brother:
In his reflections, author Bill Tomoff delves into the profound bond he shares with his twin brother Don. Beginning their journey together in 1958, Bill and Don have navigated the complexities of life, intertwining their personal and professional paths in an extraordinary dance of support, competition, and growth.
This book is a heartfelt tribute to a relationship that exemplifies resilience and mutual inspiration. Through anecdotes from their childhood to their careers in accounting and technology, Bill paints a vivid portrait of a life enriched by Don’s presence. Their story is one of shared trials and triumphs, a testament to the unique connection between twins and the strength of having a constant ally.
Bill’s reflections are a chronicle of twinhood and a celebration of gratitude. He credits Don’s influence for much of his personal and professional development, underscoring the importance of support systems in achieving success. This book is a compelling narrative of two lives beautifully interwoven, a journey of learning, adaptation, and relentless pursuit of excellence, made possible by the unwavering bond between twin brothers.
Advice and Life Lessons Learned from the Twinz
Throughout our lives and careers, Don and I are grateful to have learned many lessons that have helped guide our approach to our worlds. We hope some of the points noted below will resonate with you and help you “level up” and achieve greater fulfillment and success.
A great joy in our lives is when we can share and help others through our own life experiences. If any of these tips resonate with you, please share them in your world!
Do your best: Your best is all anyone can ask.
Play the infinite game: Be aware of the game you are playing.
“Don’t let work get in the way of progress.” – Don Tomoff
“Be gentle. Be kind – you never know what someone is going through.” – Bill Tomoff
Help others: In every interaction, think “help this person.” – inspiration fromBruce Kasanoff
Invest in yourself: Your time and resources. Prioritize personal development.
Read. Read: “Not all readers are leaders, but all leaders are readers.” – Harry S. Truman.
You will fail: You will make mistakes. Learn from these moments.
Be humble and carry a beginner’s (always learning) mindset.
Live a life of kindness and gratitude and express appreciation to others.
Send handwritten thank you notes: Expressing appreciation for family, friends, colleagues, customers, and others who help your journey through life is a superpower.
Generously share your knowledge and skills.
Live with an abundance mindset – not a scarcity (win-lose) mindset. There is room for everyone to win.
Embrace a growth mindset vs. a fixed mindset.
Do not gossip, judge others, or share unwanted opinions.
Lead by example.
Change yourself to change others.
People need people: Remember the African proverb – “If you want to go fast, go alone. If you want to go far, go together.“
On October 10, 2023, inspired by Sahil Bloom’s post, I began a five-minute daily reflection ritual, focusing on five aspects: Win, Gratitude, Stress or Tension, Helping Others/Shining the Light, and Activity/Personal Development. After 100 days, the practice remains a source of intentionality and personal alignment, offering clarity and a momentary escape from the digital frenzy.
Daily, I handwrite my reflections on an index card, cherishing the tactile process as a form of self-care. This habit, reminiscent of my morning meditations and inspired by the Stoicism encouragement to “put each day up for review,” encourages introspection and gratitude. Seneca’s wisdom on self-evaluation resonates deeply, prompting me to scrutinize my actions and thoughts, contributing to my ongoing quest for self-improvement.
Through this simple yet profound practice, I’ve realized the transformative power of pausing and pondering daily life. It’s a reminder of what truly matters, enabling me to confront life’s challenges with a grounded and grateful heart. I advocate this practice for anyone seeking fulfillment, urging them to start small and witness the profound impact of daily reflection.
Original Reflection
October 10, 2023. After reading a post by Sahil Bloom on social media, I began a daily reflection process of prioritizing five minutes to reflect on five aspects of my day. Sahil’s post highlighted three items, and I subsequently added two additional prompts to reflect upon.
Sahil’s original three were:
Win
Gratitude
Stress or Tension
My additions:
Help Others/Shine the Light
Activity/Personal Development
My goal with this exercise is to intentionally reflect and appreciate/inspire my daily approach to life. On January 17, 2024, I completed 100 consecutive days of reflection. I am unsure how long I will continue this process, but I feel the daily reflection brings me value by helping me be intentional about my perspective and how I want to bring myself to the world daily.
The daily reflections are handwritten on an index card. I deliberately chose to do this exercise manually vs. electronically. Sitting with my thoughts and handwriting my observations are my way of slowing down and creating a pause in my life – away from the distractions of the non-stop digital worlds we live in. The gift of the process is the daily reminder of the areas I want to prioritize and be certain to “sit with” for a few minutes to look at my day and ask, “How did I do today, and what highlights do I want to remember?” Writing my observations by hand creates a few moments of joy/contentment for me. The act itself is a gift I am giving to myself and is a small part of my self-care.
An aspect of my personal development that I wrote about in my blog post dated May 20, 2023, Dawn of Awareness: A Journey of Self-Discovery through Morning Meditations, is my love of morning quiet time, where I read several daily meditations that help me reflect and prepare for the upcoming day. The Daily Stoic Meditations is one of the books included in my process.
The Daily Stoic Meditation for January 22nd, The Day In Review, resonated with me. The encouragement is to prioritize time to evaluate our day and assess how we feel about our day’s performance. My approach with the index card is a mini-version of the daily stoic recommendation. While I reflect and write, my mind assesses the areas I have identified as a priority in my life. As noted in the Meditation:
“I will keep constant watch over myself and—most usefully—will put each day up for review. For this is what makes us evil—that none of us looks back upon our own lives. We reflect upon only that which we are about to do. And yet our plans for the future descend from the past.”
—Seneca, Moral Letters, 83.2
“Take time to consciously recall the events of the previous day. Be unflinching in your assessments. Notice what contributed to your happiness and what detracted from it. Write down what you’d like to work on or quotes that you like. By making the effort to record such thoughts, you’re less likely to forget them. An added bonus: you’ll have a running tally to track your progress too.”
Can a short process of assessing and journaling each day enhance your life? I encourage you to start small and try it! May you find contentment and fulfillment as you “put each day up for review.“
Since 2009, my twin, Don, and I have been captivated by the potential of social media, using it to foster our personal and professional growth and share insights through initiatives like #TwinzTalk and #TwinsTechTip. Our journey on these platforms laid the groundwork for a deeper exploration into specialized communities of practice (COPs), a transition inspired by Seth Godin’s 2020 blog on “A Community of Practice.”
My wife, Terri, and I embarked on a COP new venture, starting with a writing community group in 2020 during the COVID-19 pandemic. These focused communities have been a wellspring of learning and growth and building new connections and knowledge beyond the broader platforms available through social media. Influential figures like Tanmay Vora, Rajesh Setty, and Harold Jarche have been instrumental in this journey, inspired by Tanmay’s work on leadership and learning, which deeply resonated with me.
This shift to more intimate COPs has been transformative, aligning with the principle “to whom much is given, much will be required” (Luke 12:48). It echoes the support and kindness my family experienced during my son Ryan’s cancer battles, a blessing I am committed to paying forward. The journey through COPs and virtual communities has been profound, reminding us of our responsibility to contribute and grow within these nurturing spaces and our broader network when possible. I embrace the requirement that my talents and gifts must be shared with my broader network – a network that is exponentially larger through the availability of social media and COPs.
“To give anything less than your best is to sacrifice the gift.”
–Steve Prefontaine
Original Reflection
I have separately written about my appreciation of participating in Communities of Practice (COP). I am developing a blog post that takes a deeper dive into how my wife, Terri, and I have been encouraged and inspired through our involvement in various communities that started in June 2020.
My contemplation about my involvement in COPs lifts me up. I am grateful to many wonderfully talented, generous, and kind participants who have helped me learn and grow. The community’s participants care about developing their craft and helping others on their path. The environment is enriching.
Before joining a specific COP (Writing in Community was my initial participation), I felt a “looser,” yet similar, connection through many social media relationships that have developed over the years. I revisited a blog post from Tanmay Vora titledLeading and Learning: How to Feed a Community. Now, after my experience with specific COPs over the past 3+ years, Tanmay’s post resonates more clearly with me.
Tanmay Vora Sketchnote –Lisa Haneberg “How to feed the community.”
“The idea of “to whom much is given, much will be required” is that we are held responsible for what we have. If we are blessed with talents, wealth, knowledge, time, and the like, it is expected that we use these well to glorify God and benefit others.” [BOLD emphasis is mine]
I credit my first awareness of the above thought to Mr. Abe Pollin, the owner of Washington Sports & Entertainment, the organization I worked with from 1996 to 2011. Beyond wealth, we must help others with the other blessings we may receive – such as talents and knowledge. An additional blessing that I am committed to paying forward for the rest of my life is the gift of kindness and support that family, friends, community, and strangers have brought to my family’s lives through my son Ryan’s 27+ five-time battles with cancer. I am forever indebted and grateful for all the gifts in my life, and I will use those gifts to help others.
My twin Don and I love social media – we appreciated the professional potential early on, starting in 2009. Sharing a strong interest in technology and personal development, our careers have emphasized building awareness, skills, and learning across many areas that we then shared in our professional circles and on social media. We strive to enlighten others with the gifts our vision and early adopter tendencies have brought to our lives. In 2018 and 2020, we initiated #TwinzTalk and #TwinsTechTip, respectively, for sharing tips on LinkedIn.
Tanmay’s blog post inspired me to highlight his and his work’s impact on my life. Since our 2016 connection via Twitter, his talent, generosity, and kindness for helping others around leadership and conveying his learning into beautiful digestible sketchnotes have helped sharpen/refine my interest in personal development and my potential for helping others through my experiences and life learnings. Helping others learn and grow their talents is my gift and the purpose of my work. In Tanmay’s blog post, he notes:
“Lisa Haneberg, one of my favorite bloggers, wrote about how to feed a community where she said,
If we want to belong to a vibrant community we have to feed it.”
“It became quite clear to me that learning is a social act and we learn the most when we learn together.
In the communities that we choose to belong to (online and offline), we have to do our part in feeding it. It is only when we are generous about sharing our gifts that we build credibility to receive anything meaningful in return…”
Tanmay also mentions Rajesh Setty and his course offering “The Right Hustle,” along with Harold Jarche and his work aboutPersonal Knowledge Mastery. I am connected to Rajesh and Harold and have learned much from them. My interest and action to follow are all thanks to Tanmay’s belief in their work. I am forever grateful and indebted. My responsibility is to pay forward their contributions by helping others in my network.
In May 2020, Seth Godin shared a blog, “A Community of Practice,” that led Terri and I to join a Community of Practice (a separate, more in-depth discussion of this to follow). In addition to the learning community that Don and I have developed via social media, Seth introduced the possibility of joining specific intimate communities that created the potential for greater connection among like-minded, kind, and generous people. Little did we know the magic that would unfold for us, beginning with our initial enrollment in a writing-in-community platform in June 2020! The pandemic and virtual communities of practice collided in 2020, and as Doctor Seuss would say:
“Oh, The Places You’ll Go! You’ll be on your way up! You’ll be seeing great sights!”
–Dr. Seuss, Oh, the Places You’ll Go!
Who feeds your learning, and are you living up to your responsibility to do your part in feeding the community?
Terri and Bill Tomoff with book efforts in Writing In Community community of practice 2020-2021
Be Kind – some themes need to be front and center every day of every year.
Happy New Year to all. Wishing everyone a 2024 year filled with kindness and compassion for yourself, others, and our world! Together we can go far…
Andrea Sanchez, thank you for the inspiration and opportunity to share the message with “Be Kind” signs from the “Wisconsin Kindness Angel”.
The above comments were originally shared on LinkedIn with TwinzTalk tip 1179.
In connection with my “Word of the year” for 2024 – Value – I am contemplating the many ways we can bring value to ourselves and others.
I am finding contentment in the all-encompassing nature of the word. The principles I aspire to live by – such as kindness, appreciation, and helping others – contribute to forming my thoughts, decisions, and actions as I go through my day.
While I was out running errands today, it occurred to me that our presence around others (whether we are calm, smiling, or showing enthusiasm, if possible) is a subtle yet compelling way to bring value to our world.
The thought that struck me was, “Your presence matters. Our energy can inspire a ripple into the world.”
Unfortunately, human nature tends to bend towards negative sentiments and “what is wrong” with any situation. When we have a positive experience, it often goes unnoticed, or we move through the moment with no appreciation because the outcome is what we expected. Oh my, such a sad state to carry through our lives!
How about we recognize the problem by recognizing that highlighting negative experiences and complaining about life’s everyday challenges brings an awful vibe to our world?
Let’s intentionally “flip the script” and celebrate the everyday caring and kindness around us. This action will create an energy that has the potential to ripple beyond our imagination. And, by the way, it feels good to be this type of person.
In my daily writing, I recently collaborated with ChatGPT to expand on my belief the “kindness and generosity begets more kindness and generosity.” Along this theme, these quotes resonated:
“Carry out a random act of kindness, with no expectation of reward, safe in the knowledge that one day someone might do the same for you.”
– Princess Diana
“Remember there’s no such things as a small act of kindness. Every act creates a ripple with no logical end.”
– Scott Adams
Collaboration with ChatGPT
I asked ChatGPT a few questions about my belief that “kindness and generosity begets more kindness and generosity.” The response noted, “Reciprocal Altruism is a fancy way of saying, “If I help you today, maybe you’ll help me tomorrow.” But the most important part is that you help without expecting anything immediately, just because it’s kind and friendly.”
I added the following prompt:
“I understand your explanation of reciprocal altruism, but I struggle with your presentation – I believe in kindness and generosity with no expectation of a direct reciprocal action. Rather, I believe the “universe” will reward me over the long run. Thus, I believe the style will reward those who consistently practice goodness and kindness, but we cannot be directly looking for reward and affirmation.
Am I making any sense?”
ChatGPT responded with an answer that more aligned with my thinking:
“Yes, you are making perfect sense. Your perspective aligns with a more altruistic or selfless approach to kindness and generosity. In this view, acts of kindness are done without expecting direct reciprocation from the individuals you help. Instead, there’s a broader belief that these good deeds contribute to a positive shift in the universe or the overall fabric of society. This shift may bring about positive outcomes in the long run, potentially in indirect or unforeseen ways.
This approach is more philosophical and spiritual than the concept of reciprocal altruism as defined in social psychology. In comparison, reciprocal altruism focuses on a somewhat transactional understanding of kindness (I help you, expecting that you or someone else will help me in return); your belief system is centered around contributing to the greater good without immediate or direct expectation of return.
In many ways, this can be seen as a more pure form of altruism. It’s about contributing positively to the world and trusting that these actions create a kinder, more generous environment overall. This belief in the long-term, indirect rewards of goodness and kindness resonates with various philosophical and spiritual teachings across cultures. It’s a view that underscores the intrinsic value of good deeds and the belief in a kind of moral balance in the universe.”
Thank you, ChatGPT! The explanation provided beautifully articulates the sentiments I carry in my heart and hold onto to inspire me to strive to set an example of kindness and generosity.
I pause to reflect back on November 3, 2004, a day ingrained in our hearts as we nervously sat in Duke University Medical Center, awaiting the marrow donation that held the hope of a fresh lease of life for Ryan, battling Acute Lymphoblastic Leukemia.
The week of outpatient radiation Ryan endured, wiping out his immune system, only intensified the need for a successful transfusion, each passing moment fueling our prayers for the meticulous execution of the transplant.
Our beacon of hope was Scott Harris, whose altruistic act of marrow donation from miles away in New York was the cornerstone of Ryan’s fight for survival. His selfless act is a testament to the adage that humanity thrives in unity.
Rajesh Setty’s words, “Life-changing gifts deserve a lifetime of gratitude,” resonates deeply with our experiences, encapsulating the essence of thankfulness we foster each day for Scott and many others whose benevolence has been a guiding light in our journey.
The narrative within Terri’s memoir, “The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles,” not only chronicles our voyage through turbulent times but also advocates for the priceless act of marrow donation, urging the reader to explore and share the life-saving potential encapsulated in “Be The Match.”
Our narrative is a homage to the boundless generosity we’ve received and a call to action for others to partake in life-altering acts of kindness, fostering a continuum of hope and lifesaving camaraderie.
Full Reflection (Written November 3, 2023)
“Life-changing gifts deserve a lifetime of gratitude.” – Rajesh Setty
November 3, 2004. Nineteen years ago today, my family and I were in Durham, NC, at Duke University Medical Center. Terri Tomoff and my son, sister Olivia’s brother, were with Ryan as we anxiously awaited the marrow donation to be delivered to Duke and prepared for transfusion to Ryan. We all were praying for the successful execution of steps that needed to be taken to provide Ryan with his opportunity for a life-saving transplant. He was waiting in his hospital room after having completed a week of outpatient radiation that eliminated his immune system – his body’s ability to fight an infection was non-existent.
When we experienced Ryan’s 3x wars with childhood cancer (ALL – Acute Lymphoblastic Leukemia), we immediately understood that people need people. Success in the process was not in our control. The realization creates desperation. On this day in November 2004, we all waited anxiously for the necessary steps that had to unfold before delivering the marrow transfusion to Ryan.
We would only learn the specifics a full year later. Still, our donor, Scott Harris, from the New York area, started the morning of November 3rd by going to a local hospital to have his marrow harvested for delivery to Duke, where a ten-year-old boy and his family waited. At approximately 7:45 PM, the transplant was started!
Every day, we carry an attitude of gratitude for Scott Harris and the gift of life that his selfless act provided to Ryan and our family. Yet, on the anniversary, we take an intentional pause and reflect on his kindness, along with the care and compassion of many people and medical professionals who dedicated their efforts to Ryan’s survival. Rajesh Setty’s quote above, which I discovered in his YouTube video, “Growing and Changing the World One Thank You at a Time,” could not more perfectly articulate the emotion in our family.
I encourage everyone to watch the video for thought-provoking inspiration and encouragement from Rajesh, particularly from 3:00 to 5:05 minutes, where he references Dr. Howard Hogshead and life-changing gifts.
The list of people I feel heartfelt gratitude for is very long, and we dedicate our lives to helping others, honoring those who have impacted our journey and who ultimately gave the gift of life to Ryan.
In her memoir book, The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, Terri discusses Ryan and our family’s in-depth journey through transplant (Chapter 23 – The Transplant) and the emotional meeting with Scott Harris on November 4, 2005 (Chapter 27 – Can YOU Be The Match?).
As Terri asks with her title of chapter 27 – can you be the match? Please check out and share the critically vital link to Be The Match.
November 3, 2004 – Ryan Tomoff transplant is started at 7:45 PMNovember 4, 2005 – Ryan Tomoff meets his Bone Marrow Transplant donor Scott Harris.July 2021 – Olivia, Bill, Terri, and Ryan Tomoff celebrate Terri’s The Focused Fight book, published March 11, 2021December 2019 – Olivia and Ryan Tomoff – Maui, Hawaii
My twin Don and I have been learning, “playing with,” and working to identify compelling personal use cases for using CGPT to enhance our performance and ability to bring increased value to ourselves and others.
The summaries provided here were a direct result of prompting CGPT based on the full text of the chapter. I have first-hand knowledge of the topic (creator of The Postcard Project), so I can verify the results of our family’s direct experiences. I have tweaked the results below for greater clarity and accuracy, yet the starting point provided by CGPT astounded me!
I started by copying and pasting the chapter’s entire text, about 1,500 words, into CGPT and prompting it for a 500-word summary recap. Then I prompted, “Why was the postcard project important for Ryan and our family?” The results encouraged me to share in this blog post. Reminder – I carefully read the answers generated by CGPT and modified the results to reflect sentiments that aligned exactly with my feelings. However, the “head start” provided by CGPT is the emphasis here – I am sure this result would not have been gathered without the assistance of CGPT.
Recap of the Chapter:
Chapter 19 of Terri Tomoff’s book, The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, titled “The Postcard Project,” shares the story of a unique initiative undertaken by the family of Ryan. This young boy had gone silent after his second acute lymphoblastic leukemia (ALL) cancer relapse.
The news of the relapse made Ryan sad and uninterested in talking with almost anyone. Hoping to lift his spirits and encourage him to communicate, his father, Bill, conceived a project where well-wishers would send sports-themed postcards with supportive messages to Ryan. He was a huge sports fan.
Termed “The Postcard Project,” the idea rapidly gained momentum, with people sending postcards worldwide. In addition, Ryan received other gifts, including sports jerseys and even a letter of good wishes from the President of the United States,George W. Bush! The family had set up a P.O. Box to manage the volume of mail, which exceeded 2,500 pieces between June and December 2004.
The postcard project not only provided a distraction for Ryan but also became a ray of hope for the entire family. People’s goodwill worked wonders, as the messages he received lifted Ryan’s spirits. Depending on his health and mood, He could open the mail on his terms, either in the hospital or at home.
One touching incident mentioned in the chapter was when a nurse, who had earlier sent Ryan a postcard from Hawaii, was assigned to him at Duke University Medical Center for his bone marrow transplant. The family viewed this coincidence as a minor miracle.
Despite the trauma and uncertainty surrounding Ryan’s treatment, the chapter emphasizes the resilience of Ryan and his family. Their motto of taking things “One. Day. At. A. Time.” was a steady mantra amidst the chaos of chemotherapy treatments, infection complications, recovery, and preparation for his bone marrow transplant.
The postcard project had miraculously achieved its aim – Ryan’s spirits were lifted by the cards received, and he began to talk and engage with others. The chapter also highlights Ryan’s resolve to attend an annual weeklong cancer camp, Special Love’s Camp Fantastic, reiterating his determination and will to live.
Overall, “The Postcard Project” exemplifies the healing power of collective goodwill and how a small act of kindness can have far-reaching impacts.
Why was The Postcard Project Important for Ryan and Our Family?
The response generated by CGPT brought me great gratitude for the idea happening. It reminded me that Ryan and our family were immensely blessed with the overwhelming response that supported him throughout the summer of 2004 and his trip to and treatment at Duke University Medical Center in October 2004 until we returned to Maryland in March 2005. A couple of boxes of unopened cards traveled with us. Ryan had a consistent available supply of notes that reminded him he was loved, and a vast tribe of supporters was holding him close in their thoughts and prayers.
The reasons suggested by CGPT for the significance of the project were:
Boosted Spirits
Sense of Connection
Restored Communication
Global Support
Distraction from Pain
Family Bonding
Miracle Moments
Each reason suggested was a great observation, and Terri and I would summarize in the same way – if we were able to articulate the thought as concisely as offered by CGPT (and then reworded to our preference).
The response from CGPT (clarified wording to reflect our experience) is below.
The Postcard Project was significant for Ryan and his family for several reasons:
Boosted Spirits: Amidst the painful and exhausting process of treatments and recovery, the postcards served as a source of joy and excitement for Ryan. The sports-themed postcards catered to his interests, and the encouraging messages improved his mood.
Sense of Connection: While Ryan had retreated into silence, the postcards allowed him to maintain a connection with the world outside his hospital room. They served as a non-intrusive way for well-wishers to communicate their support.
Restored Communication: The postcards sparked curiosity and interest in Ryan, encouraging him to start speaking and engaging with others a bit more. Opening up to others was a significant emotional and psychological recovery milestone.
Global Support: The wide-ranging response from people across the globe emphasized the collective goodwill towards Ryan. This universal display of human kindness profoundly impacted his family, giving them hope and strength in challenging times.
Distraction from Pain: The postcards provided Ryan with a much-needed distraction from his painful treatments and the longer-term extensive inpatient treatment process. They served as a pleasant diversion, giving him something to look forward to.
Family Bonding: Collectively experiencing the project brought the family together, providing a shared focus and a sense of solidarity in a stressful and worrying period. It also brought joy and a sense of achievement as Ryan’s spirits improved, and he opened up to communicating more regularly.
Miracle Moments: Unexpected instances, like the nurse at Duke University Medical Center who had earlier sent Ryan a postcard, ending up as his caregiver during his bone marrow transplant. The nurse event is one example of several emotional moments of wonder and joy experienced by the family.
I am pleased with ChatGPT’s assistance in summarizing Chapter 19, The Postcard Project. The result articulates the power of what the project brought to Ryan and our family. I hope others will be inspired to be creative and seek help and support. The response and success of the project made a difference for Ryan!
Postcard Puzzle – Happy 10th Birthday
2004 – Ryan Tomoff – Louisiana Tech Women’s Basketball Staff
A longtime interest in my life has been kindness – to ourselves and others – and a curiosity about why kindness often seems missing in our lives.
Thanks to a chance encounter with Daniel Burns in the Akimbo Writing in Community (WIC) initiative that Terri and I joined in June 2020 (it turns out WIC evolved to become a tremendous gift out of the COVID pandemic challenge), I connected with Daniel and learned of his mission to encourage and spread kindness around the world, with greater intentionality. His mission ignited a flame inside me, yet now my determination to be more aware of and practice kindness has become a fulfilling integral part of my life. A few specific themes have evolved, which guide me every day:
Excellence and Kindness. Live it. See it. Celebrate it.
Be gentle. Be kind – you never know what someone is going through.
These encouragements have sharpened my lens of what I see in my world. I am not encouraging endeavors that are individually time-consuming, and the acts are often free for us to practice. Extending kindness to another person or the energy and attitude we bring to the world are available at no monetary cost and with only small incremental efforts of the time involved. The personal change that results from this mindset shift is fulfilling and life-changing.
Daniel and his kind-hearted team have introduced a global initiative inviting us all to be alert for and recognize kindness. IntroducingKindLoook – “Look a little longer, with kindness.”
Here I will share two stories of kindness that happened yesterday – enhanced by my awareness of the moment/opportunity. Each of these were “This Made My Day” (#TMMD) [H/T to Rajesh Setty] moments that brightened my day, along with those involved in the exchange!
Saturday, April 8, 2023. My son Ryan and I went to Washington, DC, to attend the Washington Capitals vs. Florida Panthers hockey game. This game was the 10th of our 10-game flex-pack for the 2022-2023 season. Over the past two seasons, we have enjoyed the flex pack and have been blessed to attend every game. Each outing with Ryan is a time I treasure being with him, savoring our time together, and sharing our love of sports. Since this game was on a Saturday, we scheduled dinner at Farmers & Distillers, a restaurant where have enjoyed several pre-game meals. After dinner, we take a short walk to Capital One Arena and enjoy the game. The two moments of KindLoook that made my day:
Ryan and I shared a wonderful time together at Farmers & Distillers. Our meals and waiter service were excellent. When we were wrapping up the meal, a small mishap occurred that the waiter was very apologetic about. Mistakes happen, and I am diligent about not sweating the small stuff. The fact is, how mishaps are handled often speaks volumes about the character of the people involved.
The waiter (Darius) came by and asked to clear my dishes. Giving my OK, he picked up my plates and proceeded to stack two existing plates he was holding. When he added those plates to mine, a small container of ketchup flipped off my plate and landed face-down on the table. Darius quickly worked to pick up the container, but again a slight mishandling occurred, and the container landed face-down in my lap – on top of the napkin I still had in my lap. I was not disturbed and worked to get the container back to Darius to finish his effort of clearing the dishes.
As the situation was resolved, Darius was ready to move on with his task of removing three sets of dishes he held in his hands. Yet, he paused, leaned towards me, and expressed gratitude for my calm behavior (I am guessing a more common customer response would be disbelief or outrage?). He said, “Thank you for your kindness about that.” I was touched that Darius was moved enough to thank me for not causing a scene. Yes, wait staff have difficult jobs, but moments of kindness when we pause and appreciate the work of others might be the moment that gets them through their shift. Think about that the next time you feel moved to complain – could you turn to a moment of understanding, compassion, and kindness – and just maybe be a shining moment in their day?
The second KindLoook moment was in the arena. Ryan and I share the same seats for every game, so we notice some consistencies during each game. In particular, a concessions beer vendor would visit our section a few times every game. He had his routine down pat. This gentleman was hard working and serious about his work [I don’t believe I could last 30 minutes carrying the container of ice-cold beers and navigating the arena stairs, crowd activity, and the inevitable a bit too drunk unkind customer]. Clearly, he was working to maximize his compensation, but it was obvious he had the process wired and handled himself well in adverse situations.
I had never talked with this beer vendor, but thinking of KindLoook when I walked by him on the concourse before the game, I stopped to talk with him. Briefly (he was selling beer, and I did not want to disrupt his livelihood), I explained my son, and I noticed him at many Capitals games, and we were impressed with how hard he worked and how he handled himself professionally. I mentioned, “I don’t drink beer,” but I wanted to thank you for your efforts and the dedication you bring to the work you are doing. I then gave him a small cash tip and noted, “Please keep up the great work you do.“
His name is Caesar, and he said, “You have no idea how much this means to me. Thank you for taking the time to give me a compliment.” WOW – I am so thankful to see Caesar in the arena concourse and have the opportunity to share a moment of gratitude with him!
My twin Don and I often express our work as “changing the world, one interaction, one person, at a time.” Let’s join Daniel Burns and fellow kindness advocates in the KindLoook initiative and change the world one interaction at a time!
