On January 23, 2024, on Facebook, I shared gratitude for Dr. Aziza Shad for her unparalleled care to our family and all patients and families under her care. I was inspired by a Susan Cain post titled Seven things my father taught me, by example. Her father was a doctor and the list of seven things he taught her was heartwarming and points we should all take to heart. Point number five immediately reminded me of Dr. Shad:
“If you happen to be a doctor, take care of your patients – really take care of them. Study medical journals after dinner, train the next generation of physicians (my father kept teaching until age 81), spend the extra hour to visit the bedside of your patients in the hospital. (Here’s a letter from one of those patients, which we found after my father passed away. He never showed us these things while he was alive.)”
Susan Cain Image – Patient Letter to her Doctor Father
The gratitude I shared in my Facebook share was:
“When I read Susan Cain’s post on Substack, this point, and the letter sent to Susan’s father, it inspired me to intentionally pause and be grateful for Doctor Aziza Shad.
Since 1996, Dr. Shad has been at our family’s side guiding and caring for Ryan Tomoff through his #ChildhoodCancer wars and beyond to monitoring the late effects of his treatments through the years.
The image above IS the essence of expertise, care, and compassion that Dr. Shad has brought to our family and every patient and family blessed to be a recipient of her care.
Please read Susan’s full Substack post and my wish is you can share your #gratitude with someone who made a forever impact in your life 🙏❤️.
Dr. Shad, thank you… the words shared by a patient, in Susan’s post, are beautiful. The Tomoff family carries these sentiments for you:
“How do I start, where do I begin to express my feeling of gratitude. appreciation to a [doctor] that has compassion, knowledge, and the kindest doctor… I had the pleasure to have in our lives.
Your caring, right from the heart, your kindness to always lead us in the right direction. We never thought to get a second opinion. Whatever you advised was good enough for us. BECAUSE YOU CARED, TRULY CARED….” “
Please prioritize 35 minutes to hear Dr. Shad’s perspective on treating her patients and their families. She cares deeply about all whom she is entrusted to care for. In the pediatric world, the child patient and the family must be considered to achieve the optimal outcome of curing a child. Aransas does a beautiful job guiding the conversation, and the entire podcast was an inspiring listen.
In the interview, Dr. Shad discusses why she chose pediatric cancer as a specialty, the founding of The Aslan Project dedicated to pediatric cancer in Ethiopia, and her mission to be accessible 24 hours per day, seven days a week! She is a godsend to our family. Listen in and be inspired – may we all approach our lives and careers to make the most meaningful difference we can.
In this introspective blog post, I reflect on the concept of one’s “body of work” – the unique collection of experiences, talents, and contributions that make up an individual’s life story. Inspired by the writings of Steven Pressfield and Seth Godin, who emphasize that we are all artists in our own lives, I encourage readers to recognize and embrace their personal growth, leadership, and positive impact on others as their own form of art.
I share my own journey of self-discovery, which began in June 2020 when I joined a writing community with my wife, Terri. Through daily writing, I gained clarity of thought and a deeper appreciation for the power of the written word. This led to the creation of four unpublished memoirs, each focusing on a different aspect of my life: my personal story, my daughter’s soccer career, my older brother’s profound impact, and my shared experiences with my twin brother.
My work encompasses various meaningful areas that have shaped my identity and the value I strive to bring to the world. These include my experiences as a competitive distance runner, my academic and professional achievements, my role as a family man and caregiver to my son (a five-time cancer survivor), my love of sports, my involvement in soccer and refereeing, my advocacy for childhood cancer, personal development, and kindness, as well as my engagement in social media and communities of practice.
I conclude the blog post with an invitation to readers to contemplate their own life experiences and recognize the unique talents and nuances that make up their individual stories. I encourage everyone to embrace their personal body of work and continue refining it throughout their lives, joining me on this shared adventure of self-discovery and growth.
Full Original Writing – Introduction to My Body of Work
What is your story? Everyone has a story… and we all develop a body of work that builds as we find our path through life. Our body of work grows and our life perspective and wisdom is the gift of our work. We all are artists creating our own unique art that cannot be replicated by another human.
“One of the major responsibilities of a person is to make that intellectual spark which you have received from heaven illuminate the world around you.”
—Chinese Wisdom
The opportunity I am embracing here is to share my interpretation of my body of work through my personal lens. This writing is inspired by reading The Daily Pressfield by Steven Pressfield and The Icarus Deception by Seth Godin. Steven and Seth emphasize that we all can be/are artists in our lives. I love this – we just need to recognize how we grow, lead, contribute, and help others, is our art, if we care enough to put our heart and soul into the work of being our best every day.
As you read the rest of this introduction, I encourage you to contemplate, “What is my body of work that is the art creating my life story?”
My life has evolved from being a fiercely independent, accomplishment-driven young man to a family man led by my life experiences to building and developing my talents so I can maximize helping others and leaving the world a better place for having been alive.
My adventure into deeper self-introspection started in June 2020 when I joined my wife, Terri, in a writing community. Over the past [almost] four years, we have grown to love the daily process of writing, the clarity the writing brings to our thoughts, and an appreciation of the gift of writing and the community of kind and caring people participating with us.
My efforts have resulted in four unpublished memoirs that I have completed. I have gained tremendous enjoyment from writing these memoirs and fulfillment knowing the thoughts, appreciation, and memories I ultimately leave for my family. The four memoirs have now made it possible to think about and more clearly articulate my body of work through the blessing of my 65-plus years of life,
The four unpublished memoirs completed, and one in process, include:
December 2020 – Living Life…Off The Track. My personal memoir.
December 2021 – Forever Changed: One Family’s Adventure with The Beautiful Game of Soccer. My memoir of our daughter Olivia’s 15-year soccer career.
January 2023 – “Million Dollar Al” and Beyond. My memoir of my older brother Alex and his profound impact on my life.
December 2023 – Double Vision: Seeing Life Through Twin Eyes. My memoir of my twin brother Don and our shared adventure in life.
TBD (in-process) 2024 – I Did My Best. I Cared: Reflections on Experiences, Lessons Learned, and Heartfelt Tips to Live a Fulfilling Life.
As I write at this point in time, the meaningful areas of my body of work are many. I hold each of these close to my heart. They have shaped who I am and the value I strive to bring to the world every day. The areas include:
Competitive distance runner
College academics
Career
Family
Caregiver, with Terri, for our five-time cancer survivor son Ryan.
Post-Traumatic Growth
Love of sports shared with family
Soccer and soccer referee
Advocate for childhood cancer
Advocate for personal development
Advocate for kindness
Social Media 2010 and forward
#TwinzTalk cofounder 2018
Philosophy of Stoicism since 2019
Communities of practice
What is your story? Contemplating your life experiences, you may realize, as I have, that there are many nuances to every person’s life. We are all unique and have talents within us that no one else owns. Embrace yours and continue refining your body of work for the rest of your life! Join me on this adventure.
Follow my writing as I expand in greater depth to highlight each area of my body of work. Thank you for reading!
I pause to reflect back on November 3, 2004, a day ingrained in our hearts as we nervously sat in Duke University Medical Center, awaiting the marrow donation that held the hope of a fresh lease of life for Ryan, battling Acute Lymphoblastic Leukemia.
The week of outpatient radiation Ryan endured, wiping out his immune system, only intensified the need for a successful transfusion, each passing moment fueling our prayers for the meticulous execution of the transplant.
Our beacon of hope was Scott Harris, whose altruistic act of marrow donation from miles away in New York was the cornerstone of Ryan’s fight for survival. His selfless act is a testament to the adage that humanity thrives in unity.
Rajesh Setty’s words, “Life-changing gifts deserve a lifetime of gratitude,” resonates deeply with our experiences, encapsulating the essence of thankfulness we foster each day for Scott and many others whose benevolence has been a guiding light in our journey.
The narrative within Terri’s memoir, “The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles,” not only chronicles our voyage through turbulent times but also advocates for the priceless act of marrow donation, urging the reader to explore and share the life-saving potential encapsulated in “Be The Match.”
Our narrative is a homage to the boundless generosity we’ve received and a call to action for others to partake in life-altering acts of kindness, fostering a continuum of hope and lifesaving camaraderie.
Full Reflection (Written November 3, 2023)
“Life-changing gifts deserve a lifetime of gratitude.” – Rajesh Setty
November 3, 2004. Nineteen years ago today, my family and I were in Durham, NC, at Duke University Medical Center. Terri Tomoff and my son, sister Olivia’s brother, were with Ryan as we anxiously awaited the marrow donation to be delivered to Duke and prepared for transfusion to Ryan. We all were praying for the successful execution of steps that needed to be taken to provide Ryan with his opportunity for a life-saving transplant. He was waiting in his hospital room after having completed a week of outpatient radiation that eliminated his immune system – his body’s ability to fight an infection was non-existent.
When we experienced Ryan’s 3x wars with childhood cancer (ALL – Acute Lymphoblastic Leukemia), we immediately understood that people need people. Success in the process was not in our control. The realization creates desperation. On this day in November 2004, we all waited anxiously for the necessary steps that had to unfold before delivering the marrow transfusion to Ryan.
We would only learn the specifics a full year later. Still, our donor, Scott Harris, from the New York area, started the morning of November 3rd by going to a local hospital to have his marrow harvested for delivery to Duke, where a ten-year-old boy and his family waited. At approximately 7:45 PM, the transplant was started!
Every day, we carry an attitude of gratitude for Scott Harris and the gift of life that his selfless act provided to Ryan and our family. Yet, on the anniversary, we take an intentional pause and reflect on his kindness, along with the care and compassion of many people and medical professionals who dedicated their efforts to Ryan’s survival. Rajesh Setty’s quote above, which I discovered in his YouTube video, “Growing and Changing the World One Thank You at a Time,” could not more perfectly articulate the emotion in our family.
I encourage everyone to watch the video for thought-provoking inspiration and encouragement from Rajesh, particularly from 3:00 to 5:05 minutes, where he references Dr. Howard Hogshead and life-changing gifts.
The list of people I feel heartfelt gratitude for is very long, and we dedicate our lives to helping others, honoring those who have impacted our journey and who ultimately gave the gift of life to Ryan.
In her memoir book, The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, Terri discusses Ryan and our family’s in-depth journey through transplant (Chapter 23 – The Transplant) and the emotional meeting with Scott Harris on November 4, 2005 (Chapter 27 – Can YOU Be The Match?).
As Terri asks with her title of chapter 27 – can you be the match? Please check out and share the critically vital link to Be The Match.
November 3, 2004 – Ryan Tomoff transplant is started at 7:45 PMNovember 4, 2005 – Ryan Tomoff meets his Bone Marrow Transplant donor Scott Harris.July 2021 – Olivia, Bill, Terri, and Ryan Tomoff celebrate Terri’s The Focused Fight book, published March 11, 2021December 2019 – Olivia and Ryan Tomoff – Maui, Hawaii
October 17, 1996. The day our family heard the words “Ryan has Cancer.” Ryan is my son – born on August 16, 1994. At two years and two months old, his and our family’s lives were forever changed.
Less than one year later, our family was introduced to the Special Love organization (SL), whose mission is to support children and families fighting childhood cancer. My post here shares the blessing of support and magic that the wonderful people of SL have brought to Ryan and our family over the past 25+ years.
Through Ryan’s cancer fights, we have encountered kindness, compassion, and selfless giving that many may never see in a lifetime. Children, siblings, and parents in the childhood cancer fight are often isolated and lonely and have few people in their life to “turn to” to help cope with the tragic experience of the cancer diagnosis, extended treatment of years, and lives turned upside down, that will never return to the “normal,” before cancer, state. Mostly, friends and family members don’t know what to say or do, and they also must carry on with their lives.
“I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……
When you’re going to have a baby, it’s like planning a fabulous vacation trip – to Italy. You buy a bunch of guidebooks and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It’s all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The flight attendant comes in and says, “Welcome to Holland.” “Holland?!?” you say. “What do you mean Holland?? I signed up for Italy! I’m supposed to be in Italy. All my life I’ve dreamed of going to Italy.”
But there’s been a change in the flight plan. They’ve landed in Holland and there you must stay.
The important thing is that they haven’t taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It’s just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It’s just a different place. It’s slower-paced than Italy, less flashy than Italy. But after you’ve been there for a while and you catch your breath, you look around…. and you begin to notice that Holland has windmills….and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy… and they’re all bragging about what a wonderful time they had there. And for the rest of your life, you will say “Yes, that’s where I was supposed to go. That’s what I had planned.”
And the pain of that will never, ever, ever, ever go away… because the loss of that dream is a very, very significant loss.
But… if you spend your life mourning the fact that you didn’t get to Italy, you may never be free to enjoy the very special, the very lovely things … about Holland.”
***
A short time after Ryan’s diagnosis, we met Kathy Russell at Georgetown Hospital, and she was the person to introduce the Special Love organization to our family. We did not know it, but Special Love was a part of the “Holland” that our family had now traveled to in our life’s journey. In September 1997, only 11 months after diagnosis, our family attended a weekend event called “Under 7” for cancer kids under the age of seven and their families. This was the start of a community that became life-enhancing for Ryan and our family.
Tom and Sheila Baker founded Special Love in 1983 after losing their daughter Julia in 1976 to lymphoma. Turning tragedy into good… “Something clicked,” Tom later recalled. “It was as close as I’ve ever felt to a divine calling.”
Our introduction to the Special Love organization and events throughout the year gave our family a “home” where we could learn from and be supported by others who had traveled or were traveling the road that Ryan and our family were now on. Once Ryan was 7 years old, he attended the signature camp of Special Love, “Camp Fantastic,” Olivia went on to attend “BRASS Camp” for brothers and sisters of siblings fighting cancer. Terri and I met many families who became part of our support network and are now lifelong friends. The children and parents were in an environment where others “understood” the challenges and bonds developed that have endured over the past 25 years and counting.
Ryan attended Camp Fantastic for a record 11 straight years until he aged out at 18 years old. He has gone on to become a camp counselor for what he notes is “the best week of the year.” Olivia attended the BRASS Camp for many years, met her lifelong best friend, Liz, and also served as a counselor. In 2018, I was honored to join the board of directors of Special Love and am now in my sixth year of spreading the good word about the life-changing work this organization does for those fighting childhood cancer.
In April 2019, Ryan presented to a crowd of about 300 supporters at the annual Special Love Gala. I had offered to help Ryan prepare for his speech, but he insisted he did not need my help. The night of the gala, I introduced Ryan and did not know the contents of his speech. Here we were, “winging it [or so I thought – a secret – Ryan had diligently prepared],” and I felt nervous about him to be stepping up to the stage and speaking from the heart. I will never forget my immense pride as Ryan took over the podium after my introduction. He spoke for the next eight minutes or so, sharing the power of what Special Love had done for him and our family. I was emotional and choked up for him – my son had just turned into a young man right before my eyes!
“In a tough situation, few people wake up every morning and say, ‘I’m going to be resilient today.’ Most people under extreme stress wake up with heavy hearts but with a small quiet voice that tells them never to give up. Resilience is listening to that small inner voice and finding people and organizations to help you slowly turn up the volume.”
Our friends at Special Love help connect cancer families, and indeed, over time, the families are able to “turn up the volume” to receive support and to return the support to others in need. When our family arrived in “Holland,” Special Love was there waiting for us.
I am celebrating my planking adventure, which has reached 1,826 days, and exactly five consecutive years! In 2018, Don and I took on a 30-day planking challenge, hoping to accomplish the challenge and maybe help strengthen our core muscles to assist in reducing lower back muscle spasms that we had a history of in our lives. While my streak is fully intact, Don has only missed two days of 1,826. My twin brother, as an accountability partner – chalk up another advantage we have related to being twins.
The results?
Life lesson about mindset shift – “I get to do my plank vs. I have to do my plank.” Each day I plank is a blessing.
Consistency matters more than intensity. Show up in a small way daily, and intensity and success WILL follow.
The lower back health benefits have been extraordinary! My lower back feels better than twenty years ago, and my incidence of spasm occurrences is dramatically reduced.
As my planking success has accumulated, my confidence to take on other small positive daily habits has soared. I now have several small habits that are part of my daily lifestyle.
Proudly embracing my uniqueness is FUN. Each day is filled with contentment as I live what is important to me.
Contributing to improved self-esteem. I have always been disciplined and confident in my abilities – yet the satisfaction of showing up daily to do my plank has strengthened my resolve in other areas of my life.
What small daily positive habit can you adopt? Join Don and me today!
December 11, 2022 | Bill, Seth Godin, and Terri Tomoff meetup
“If you’re not prepared to sing alone, it’s difficult to get to the point where people sing along with you.”
Seth Godin’s blog – February 8, 2023
Seth Godin closed this morning’s blog with the above quote. His encouragement for us all to be willing to “sing” alone is a reminder we all need – if we are going to make a contribution and difference in our world.
Over the years, my most grateful takeaway from Seth’s work is his emphasis that the ability to “choose yourself” has never been easier thanks to technology. When you choose yourself, you are willing to go forward alone and believe in, or trust, your own vision. Metaphorically, when you choose yourself, you are stepping out and willing to “sing alone.”
Personally and professionally, my life’s joy, contentment, and success have resulted from advantages accrued through a willingness to go alone and stay the course for the long term when my heart believed in what I was doing. The willingness to go forward day after day without seeking affirmation is a compelling strength that I have enjoyed. As the benefits of “singing alone” started to compound, the desire to go down the less traveled path became a fabric of my lifestyle.
When you travel alone in your interests, you eventually discover others who share the same mindset, and your tribe slowly grows. To celebrate the small, caring community of a small tribe, my twin Don and I created the “Virtually No One Community” (thanks to Seth’s blog of January 2, 2023) to celebrate those of us who, in the macro view, stand alone in our work and the value we bring to the world. We all possess unique interests and talents that virtually no one has – unfortunately, too often, we suppress our true selves in the interest of fitting in and being like others. How tragic to live a life seeking to fit in and not allow our individual uniqueness to shine and help others!
A few examples of “singing alone” in my life include:
Dedication to my love of distance running and being a competitive runner for over ten years. Competitive distance running is often a lonely road that requires sacrifices few would be willing to make.
Events of fate will require that we “sing” alone. The fact is that we are required to adapt to external events of which we have no choice. Two notable moments of fate in my life include being born as a twin (brother Don – which has been a blessing that is impossible to convey) and the 1996 diagnosis of my two-year-old son, Ryan, with childhood cancer (ALL – Acute Lymphoblastic Leukemia) that thrust our family’s life into inexplicable chaos from that day forward. See the memoir by my wife, Terri, titled The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles.
Professionally, twin Don and I developed and challenged our thinking non-stop throughout our careers in accounting and business. Through our early adopter mindset around technology, we have repeatedly gained a disproportionate advantage allowing us to make exceptional contributions and help others in our careers.
My perspective of an abundance mindset, dedication to personal development, kindness, and gratitude, has enabled me to continually grow and lift my spirits and the spirits of others.
In March 2018, I co-founded #TwinzTalk with Don to share tips for encouragement and personal development via social media. “Changing the world, one interaction, one person, at a time.”
In June 2020, Terri and I joined the Akimbo Writing In Community (WIC) initiative. I now consider myself a writer, and my daily process of showing up to write is a gift I treasure.
Inspired by Seth Godin’s blog posted on January 2, 2023, my twin Don and I are starting the “Virtually No One” community. This community is for people who personally and professionally take “the road less traveled” and, in the long run, are making a compelling difference for themselves and their world.
Virtually no one is enough. Our lives and this community are committed to believing that a small act, thinking differently, and using our talents to solve problems, one individual does make a difference. We trust this to the core as we have seen proof throughout our lives and careers that our early adopter mindset, combined with a vision of potential, has exponentially rewarded, over and over. We know our beliefs and actions are “changing the world, one interaction, one person, at a time.”
Seth’s blog notes:
“Compared to the overall population, virtually no one built Wikipedia, virtually no one voted for that senator and virtually no one starts a business. Virtually no one cares enough to help a stranger in need, and virtually no one leads the way.
And that’s okay.
Because virtually no one is enough.
“When we “see” the potential of thinking and working differently, the space is lonely and only persistence, and long-term dedication provides hope for progress (for example – consider the Slack collaboration tool introduced in 2016 – highly resisted in its early days, but now ubiquitous along with Microsoft Teams, in today’s world). The payoffs when the idea succeeds are very gratifying. To be clear, failures frequently occur, causing many to say, “I knew that wouldn’t work.” Because of the fact that failures do occur, and many folks will not move ahead (late adopters) without convincing definitive proof of success, virtually no one is willing to walk the path.
A few quotes of inspiration:
“Don’t worry about people stealing your ideas. If your ideas are any good, you’ll have to ram them down people’s throats.” –Howard Aiken
“Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round pegs in the square holes… The ones who see things differently – they’re not fond of rules. You can quote them, disagree with them, glorify or vilify them, but the one thing you can’t do is ignore them, because they change things… Because the ones who are crazy enough to think they can change the world, are the ones who do. Think different.”
In all our actions, we think of helping others and helping the communities in which we live and work. Commit to personal development/self-improvement and lean on your talents to help others. Do what is right in your heart, and do not strive to “fit in” with the masses. To fit in is doing our genuine selves a disservice. We all are meant to and have so much potential to significantly contribute to the world with our unique talents.
A few examples of virtually no one community members:
Don made a trip to Costco Wholesale recently and noted many stray carts in the parking lot. Case in point, virtually no one (other than an employee of Costco) will take the time to collect and return several carts to the appropriate stations and out of the vehicle’s harm’s way.
How about picking up trash in our communities? Again, welcome to the virtually no one community!
My wife Terri published a memoir of our son Ryan’s 5x cancer battles (The Focused Fight). Well, virtually no one writes a book.
Let’s get active and dedicate our talents and energy to making a positive contribution – in ways and areas where virtually no one, unfortunately, is paying attention. Join us, shine the light, and share your stories!
December 31, 2022 – Don Tomoff at Costco Warehouse – shopping carts assistanceJuly 24, 2021 – Ryan and Terri Tomoff at The Focused Fight Book Launch
