For twin Don and me, a consistent theme in our lives has been a desire to develop to the best of our abilities. In earnest, we recognized this fully during our college years…when it felt as if our career survival was at stake based on our academic performance (in the 1980s, this feeling was probably more true than today in 2024).
While not realizing it then, the love of personal development and striving to do our best was born during the college years at Ohio University. Competitive distance running on the varsity cross-country and track and field teams, balanced with the academic workload of pursuing a business degree (accounting major), consumed our focus – and we were each other’s accountability partners before we knew of such a term.
Purely self-serving during those years has evolved into personal development to bring our best self forward for our families and employers and our quest to use our talents and skills to bring out the best potential in others. My “Why” is now articulated as “Helping others is rewarding and provides me fulfillment and gratification.” Helping others is the best way to help yourself.
Thanks to the evolution of social media and communities of practice groups, the possibilities for connecting and learning with others have grown exponentially. We live in an exciting time with the potential of virtual connections and learning via technology (online courses, YouTube, etc.). With a willingness to invest in yourself, resources are abundant (often FREE).
Like Nils and Jonas, I now view Stoicism as a core component of my personal development quest. ChatGPT describes Stoicism as follows (to explain to a high school student):
“Stoicism is a philosophy that teaches us to focus on what we can control—our own actions and attitudes—and to accept what we can’t control, like other people’s actions or life’s unexpected challenges. It encourages us to respond to life’s difficulties with calmness and resilience, striving to be our best selves by practicing virtues like wisdom, courage, and self-discipline. By focusing on our own behavior and learning to accept whatever life throws at us without getting overly emotional or upset, Stoicism helps us lead happier, more fulfilling lives.”
If you are interested in Stoicism, I highly recommend The Little Book of Stoicism. Yet, now is when the journey becomes more fun! Don and I believe personal development should be a priority for everyone. Too often, we feel in the minority and cannot understand why individuals do not relentlessly prioritize time to “sharpen the saw,” as Stephen Covey shares as one of theseven habits of highly effective people.
We discovered that Nils and Jonas are on a mission of personal mastery. Their passion for their mission is heartwarming and inspiring for the Twinz. On their website, NJLifeHacks.com, they share their encouragement (and tie in personal development to Stoicism):
“We’ve started NJlifehacks in 2016 in the hope of making a living with our passion for all things personal growth and self-development.
You see, when we hear something that promises to help us become more confident, mindful, charismatic, kind, and loving versions of ourselves, we’re all ears. We can’t help ourselves.
Some people think we’re weird or too serious or too driven, but they don’t get it – this is our passion. We love reading about the latest bio-hacks, new psychological studies, or ancient spiritual texts by Indian gurus (say about Osho what you will, but this guy had some incredible insights). Since starting the website, we’ve easily spent over $5,000 on books. You see, when others read about the latest celebrity scandal, we read about the latest breakthrough in positive psychology research. As our father would say, to each his own, right?”
“We’re letting you in on a little secret. Just don’t tell anyone, right? We have found, after being on this path to self-mastery (for lack of a better word) for a long time that the best way to get more confidence, self-trust, certainty, and all of that great stuff is through Stoicism.”
“In one sentence: NJlifehacks is a personal growth company dedicated to helping people become better versions of themselves through ancient wisdom and modern science. We do this through our blog articles, books, online courses, email newsletter, and personal coaching.”
Personal development has been a lifelong passion for my twin brother Don and me, born out of our competitive college years and desire to be our best selves. What started as self-serving during our college years has evolved into striving to bring out the best in ourselves and others.
Introducing the Inspiring Work of Nils and Jonas Salzgeber
In Part one of this series, I’ll share the background of Don and my personal development journey and introduce you to brothers Nils and Jonas Salzgeber. Their mission of personal mastery through their newsletter and website, NJLifeHacks.com, resonates with us. They combine ancient wisdom like Stoicism with modern science to help people become better versions of themselves.
I’ll also preview the three book recommendations that are covered in this blog series:
Coach Wooden’s Leadership Game Plan for Success by John Wooden and Steve Jamison
Benjamin Franklin: An American Life by Walter Isaacson
The Little Book of Stoicism by Jonas Salzgeber
Part two dives deeper into the timeless life lessons we can learn from legendary basketball coach John Wooden. His wisdom on hard work, staying in the present, and improving yourself to improve the team is powerful.
Part three explores Benjamin Franklin’s 13 Virtues that were key to his success and pursuit of self-improvement. These character traits like temperance, sincerity, humility, and others are relevant today. Walter Isaacson’s insightful biography of Franklin is also referenced.
I hope this series inspires you never to stop learning, improving and becoming the best version of yourself. Let’s go on this adventure together and help bring out the potential in each other along the way. Stay tuned for part one coming up next!
In this heartfelt blog post, I share a deeply personal story of how the compassionate leadership of Abe Pollin, owner of the Washington Wizards, helped me navigate a family crisis while maintaining my professional responsibilities. My two-year-old son, Ryan, was diagnosed with Acute Lymphoblastic Leukemia (ALL) shortly after our family moved to the Washington, DC area in 1996.
Amidst the chaos of intensive medical care necessary to save Ryan’s life, I received unconditional support and understanding from Mr. Pollin and the Washington Sports & Entertainment (WSELP) organization. Mr. Pollin’s advice to “Keep your eye on the ball, and that ball will change from time to time” resonated deeply with me, helping me prioritize my family and my son’s health while managing my professional obligations.
I express immense gratitude for the trust, flexibility, and genuine concern Mr. Pollin and my colleagues at WSELP extended to me. This support was critical in enabling me to persevere through the challenges of balancing my role as the sole provider for my family, maintaining healthcare coverage, and fulfilling my professional responsibilities.
The blog post also highlights the lasting impact of Mr. Pollin’s leadership style on my life and career. My dedication to the organization, particularly during the sale of WSELP’s assets following Mr. Pollin’s passing in 2009, is a testament to the loyalty and respect inspired by Mr. Pollin’s compassionate leadership.
Through this personal story, I emphasize the importance of empathetic leadership, focusing on what truly matters and expressing gratitude for the support received during life’s most challenging moments. The blog post is an inspiring reminder to readers to identify and focus on their “ball” – their highest priorities in life.
Full Original Writing
“Keep your eye on the ball.” These words of wisdom and encouragement were from Mr. Abe Pollin in early 1997. He gently and compassionately reminded me to go all in on my highest priority.
This post was inspired by an Instagram reel my son-in-law, Bo, sent me. Please watch the short video and continue reading my story of gratitude for Mr. Pollin and the career-saving and life-saving gift of understanding and encouragement that he and the culture of WSELP brought to my and my family’s lives.
On October 17, 1996, only two and one-half months after arriving in the Washington, DC, area, my two-year-old son Ryan was diagnosed with cancer – Acute Lymphoblastic Leukemia (ALL). In an instant, our world was turned upside down, and we were thrown into the day-to-day chaos of intense medical care necessary to save Ryan’s life.
I wrote more in-depth about this experience in my unpublished memoir, Living Life…Off The Track, and portions of that writing are reflected here.
March 13, 2001 | Tomoff Family at Capitals Game
When my family and I moved to Maryland, we had no idea about the leadership and genuine caring qualities of Mr. Pollin. And how that permeated into the culture of the organization. It turned out that I was a lucky professional blessed to receive unconditional support and understanding of the personal demands on me and my family. The professional who believes personal and professional lives should be maintained separately has not dealt with a life-threatening crisis. Without the company’s understanding of my personal demands, I simply could not have survived professionally.
Only days after Ryan’s diagnosis, my non-negotiable priorities were crystal clear, and I was laser-focused on where I would allow my precious time to be spent. Now, 27+ years later, my perspective has not changed, and I consider it a great gift. I fully understand my priorities EVERY DAY. In Chapter 32, Heartfelt Reflections from Bill and Olivia, of Terri’s memoir, The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, I noted:
“This trust and the team of professionals that surrounded me made all the difference in managing the impossible balance I had to maintain. I will never forget Mr. Pollin telling me, “Bill, you need to keep your eye on the ball, and that ball will change from time to time.” His use of the basketball metaphor was spot on, and he stressed to me, “Right now, your son Ryan and your family are the most important ‘ball’ in your life.”
The trust and flexibility afforded me, plus the genuine concern for my personal demands were immeasurable gifts that my WSELP colleagues extended to me. Ultimately, the organization and I were rewarded with a dramatic win-win situation. I am forever grateful for the support provided, and I know this was a critical pillar of our family’s ability to persevere.”
What were my core priorities, and how were the less essential priorities handled? I learned through a devastating life moment that most of my priorities were “nice to do” and not essential to moving my family or me forward. When you are focused on saving your child’s life, previously “essential” tasks go undone. A basketball metaphor from the owner of the NBA Washington Wizards hit me with a clarity I will never forget. What were those priorities boiled to their essence? Three rocks:
Family: Saving Ryan’s life and maintaining some sense of normalcy for our daughter and family unit.
Healthcare: Maintaining and monitoring coverage. Having coverage required that I maintain employment with benefits – I felt enormous pressure and prayed that I could deliver on this imperative necessity.
Work: Professional responsibilities had to be completed. My family’s healthcare and financial survival depended on my job as the sole provider – while Terri focused fully on caregiving for Ryan and balancing Olivia and our family obligations.
A fourth “given” was that Terri and I needed to take care of ourselves to ensure we would be the best we could be for Olivia and Ryan. I dismissed anything that did not drop into these buckets of obligations. There was no time to think, “I will put in more hours,” etc…no exception.
My role when joining WSELP was to handle the accounting responsibilities related to constructing the [then] MCI Center. The arena was a state-of-the-art facility, and the accounting aspects consumed much of my efforts from my arrival in 1996 until opening in December 1997.
In early 1997, I was informed that Mr. Pollin wanted to speak with me. To have a direct one-on-one meeting with him was highly unusual, especially considering I had been in my role for less than a year. We had a delightful conversation that started with updating him on Ryan and my family. I soon learned his highest priority was understanding his employees’ human side. Over time, employees built tremendous loyalty to him and the organization. I quickly learned Mr. Pollin was genuinely concerned about his employees and their families. Below are some of my [edited] thoughts I wrote in my memoir:
“I often mention, “surround yourself with the best,” and you will ultimately enhance your life. My WSELP experience was the best fortune in my career…one could not have asked for a more empathetic and compassionate owner/leader than Mr. Pollin. And his spirit of how to treat employees resonated with all those who worked in the organization. This experience would change me dramatically.”
“My time with Washington Sports & Entertainment (WSELP) would be an exact fit for my and my family’s life. When Ryan was diagnosed, our world was turned upside down, and I truly believe that my accounting career could not have survived in most business environments. People who go through a childhood cancer experience often face incredible challenges to maintain health insurance due to the need to abandon their employment in order to care for the sick child.”
“Mr. Pollin asked that I consider taking on additional responsibilities within the finance operations. I was flattered but surprised that they would remove any of my focus from the MCI Center construction efforts. My heart and soul were going into the effort, and I wanted to see the journey to the arena’s grand opening. This challenge is what brought me and the family to Washington, DC! In addition, I simply could not fathom taking on new responsibilities when Ryan was in the throes of his initial three years and two months treatment protocol. When I shared these sentiments with Mr. Pollin, he commented, “Bill, you need to keep your eye on the ball. In life, that ball will change from time to time.” He fully appreciated and had empathy for the fact that the “ball” at this point in my life were Ryan’s leukemia treatments and my family.”
When Mr. Pollin passed away on November 24, 2009 (age 85), of a rare brain disease (corticobasal degeneration), the focus had to shift to selling the assets of the organization. The process was intense, yet my mission was to dedicate all energy necessary to contribute whatever I could in memory of the personal support and patience of Mr. Pollin and all I worked with over the years. The accounting work was extensive and tedious from November 2009 to the June 2010 sale date and the final transaction closed in November 2010. With a heavy heart, I was privileged and honored to have a significant role in selling WSELP to Monumental Sports & Entertainment. The WSELP organization supported me and my family steadfastly through hell and back for Ryan’s treatments from 1997 to 2005. I cannot imagine any other company and leadership patiently supporting me and my family for over eight years. I am eternally grateful to Mr. Pollin for the kindness, concern, and leadership he showed through his example.
When I left Monumental Sports on June 30, 2011, Rich Brand of Arent Fox gave me a heartwarming recommendation on LinkedIn. I treasure his words as a highlight of my career:
“I am a sports law attorney with Arent Fox and have practiced for more than 25 years. For the past 15 years, I have had the pleasure of working with Bill on countless financing agreements, operational matters, accounting matters and most recently, issues relating to the sale of the enterprise. Bill’s work ethic is extremely impressive but so too are his skills. And even more importantly, his personal attributes are second to none. Bill worked tirelessly on any matter asked of him and was instrumental in helping all parties involved understand the complex financial and accounting type issues. Bill is always able to “translate” what he does and what he knows to people who are less fluent in finance and accounting. He is also an excellent supervisor and earned the respect of his peers the hard way – by doing the work the right way and always on time. He commands the respect of all who worked above and below him in the organization.
The work Bill often had to do for us (or with us) typically carried horrendous deadlines and was critical to our achieving the overall task at hand. Whether it was providing lenders or buyers with all the necessary financial and operational information or providing an analysis of risks and issues to be addressed, it was done promptly, expertly and often utilizing technology that lawyers like myself can only dream of understanding.”
Mr. Pollin and my colleagues with WSELP indelibly impacted my career and life. I am grateful to have done my best to repay (and pay forward in my life) the kindness, passion, and compassion extended to me and my family. And yes, when the “ball” has changed throughout my life, I remind myself, smiling inside and thinking of Mr. Pollin, “Bill, keep your eye on the ball…“
What is your “ball” that deserves your focus?
April 2005 | Ryan Tomoff on the Washington Wizards Court
In 2016, Terri Tomoff started on her mission to write her memoir of our son Ryan’s battles with childhood cancer. Her determination to write a book that might help and inspire others was a gift of love for Ryan and our family. Yet, the process of writing a book of this magnitude was beyond comprehension, and the effort of “butt in the chair,” as Terri often mentioned, was a difficult initiative to sustain. When Ryan was diagnosed with tongue cancer in 2016 and 2017, a result of his years of radiation and chemotherapy for his three battles with childhood cancer from 1996 through 2005, Dr. Aziza Shad emphatically encouraged Terri, stating, “You must write your book now!“
From 2016 to 2020, Terri wrote sections of the book and contemplated the structure she hoped would guide her process. After the COVID pandemic shut the world down in March 2020, Terri and I would soon make a joint decision that, reflecting back, changed our lives dramatically. Starting on June 8, 2020, we joined a community of practice called Writing In Community (WIC), led by Kristin Hatcher and Seth Godin. This community became the encouragement and support for Terri to lean into completing her memoir. I assisted with recollecting the timeline of the events, read her work, listened to her read her work, and located pictures to ensure memories were accurate. The process was arduous, and her tenacity (often 8 to 10 hours a day) toward her mission was a feat I still marvel at today in 2024. While she wrote Ryan’s memoir, I participated in WIC alongside her and wrote my own personal memoir. We shared in the community platform and grew to love the daily commitment to writing and learning. Almost four years later, as I write this on April 1, 2024, we consider daily writing and reflecting a treasure. We are forever changed through our writing and collaboration with a community of kind, caring, and generous people who desire to lift each other up. A life-changing and enhancing experience set in motion by the pandemic lockdown.
Dr. Shad was Ryan and our family’s guiding force through the years. An entire book could be written about the care and compassion she delivered because she feels so deeply for those children and families under her care. She kept Ryan, our daughter Olivia, Terri, and me standing through the years with her steady, kind, and determined mindset to leave no stone unturned in delivering the best plan of treatment and care humanly possible. When Terri asked if she would write a foreword for the book, she graciously and excitedly said, “YES!” She knew Ryan and was thrilled to participate in Terri’s initiative of helping others through Ryan and our family’s story.
When Terri first asked me to write the forward for her long-overdue book, The Focused Fight, something I had been encouraging her to do for a while, I was both humbled and honored. Suddenly, I was overwhelmed by a flood of memories of my relationship with the Tomoff family and specifically Ryan, over the years—a relationship that began in 1996 and has only strengthened over more than two decades. The only difference is that in 1996, I was a young assistant professor in the Division of Pediatric Hematology Oncology at Georgetown University Medical Center in D.C. (now Medstar Georgetown University Hospital). I was actively involved in his day-to-day treatment from diagnosis of Acute Lymphoblastic Leukemia, his two relapses,
and getting him to a matched unrelated donor (MUD) bone marrow transplant and beyond. Today I am Chair of Pediatrics and Chief of Pediatric Hematology Oncology at the Children’s Hospital at Sinai in Baltimore, Maryland, where I follow a wonderful, accomplished 26-year-old young man in the Amey Cancer Survivorship Program.
Every year, multiple books are published on patient and family experiences with life-threatening illnesses, especially cancer, but Terri’s memoir is different. It is a vivid recollection of a journey the Tomoff family had to make without their prior consent. They had to learn to navigate their way through frightening times and trying circumstances over and over again through the years, going from one crisis to the other, and yet stay intact for Ryan and as a family. Being in the practice of Pediatric Hematology Oncology for over 30 years, I have seen families break up, divorce,
siblings drop out of school, drug dependence, post-traumatic stress, and the list goes on. I have often wondered how the Tomoff family stayed together, stronger than ever today, a force to be reckoned with. The answer is quite simple. This young family with a four-year-old at home and a two-year-old with leukemia in the hospital, did it by becoming part of Ryan’s medical team. They participated in difficult decisions and trusted the oncologists and nurses who took care of him, and their unwavering faith and the conviction that he was going to get better by never losing hope or focus was it; hence the title! Their mission was simple—Ryan was going to beat his cancer!
Ryan was diagnosed on October 17th, 1996, with Acute Lymphoblastic Leukemia (ALL), Standard Risk with CNS involvement (detected by finding leukemia cells in the cerebrospinal fluid that flows from the brain down the covering of the spinal cord). He was considered Standard Risk based on his age and WBC count and enrolled on a Children’s Cancer Group Study, which meant he would be treated as per a strict set of guidelines and his clinical data. This treatment would be used to answer some really important questions that would enhance our understanding of leukemia better and hopefully improve survival for other children to come years down the road. Twenty-four years ago, we did not have the molecular and genetic diagnostic tools we have today that allow us to classify children into Low, Average, High and Very High Risk categories very early on, nor did we have some of the new agents and therapies such as imatinib, blinatumomab and CAR-T therapy, all of which have contributed to improved survival in ALL today.
I met Ryan and his parents for the first time on Day 3 of his diagnosis and the memory of that first meeting remains etched in my mind even today, 24 years later. A beautiful two-year-old angelic child with fear in his eyes at the sight of yet another stranger in a white coat, a father whose tears kept rolling down his face and a mother who was distraught but kept it together by taking copious, detailed notes, learning the unfamiliar medical jargon by the minute. Little did she know at that time, how long and complicated Ryan’s journey would be and how her notes would become a trusted reference for the different institutions on where he would be treated.
To say that Ryan’s journey through his initial diagnosis in 1996, two relapses in 2000 and 2004 followed by a bone marrow transplant was a difficult one would be an understatement! So many incidents come to mind—the episodes of sepsis and unexpected infections that landed him in the Intensive Care Unit on multiple occasions, the heartbreak mirrored in Bill and Terri’s eyes on hearing Ryan’s leukemia had come back yet again as they held Ryan and Olivia tightly in their arms, and the deep disappointment they experienced when Ryan’s first bone marrow donor backed out. Yet, through it all, this family held it together and plowed on, taking Olivia to her soccer games, making the 26 mile drive to Georgetown University Hospital with the back and forth days on end without a complaint, relocating to Durham, North Carolina (Duke) for months for his bone marrow transplant, all with one focus only—to get Ryan better.
There were good times too over the years. I saw Ryan and the family grow and transition from receiving support from family, friends, community and support groups, to giving support to many, many families grappling with the diagnosis of cancer. Through their involvement with organizations like Special Love, Inc. and parent support groups, they spent many a day giving hope and encouragement to others. They established incredible relationships and bonds with other families and medical providers that have lasted over 20 years. They went from being educated to becoming effective educators, teaching young medical students at the bedside how to communicate with patients and families, participating in the Pediatric department Grand Rounds and sharing the podium with me at the medical school when I gave my annual talk on Cancer Survivors and Late Effects of Cancer treatment.
Ryan graduated from school and enrolled in college. He celebrated his 21st birthday in Las Vegas in 2015, being the adventurer he was fast becoming! He wears the most outrageous colored pants that always make me laugh, collects sports jerseys and caps, learned to drive and became a spokesperson for childhood cancer! Terri pursued her life-long passion for quilting and joined the Southern Comforters Quilt Guild of Bowie, Maryland, inspiring them to jointly donate hundreds of beautiful quilts to pediatric cancer patients and their families in Washington D.C. and Maryland. What started as a gesture of gratitude and a desire to give back is now an international project, with Terri donating quilts to pediatric cancer programs in Africa and Latin America. We traveled together to Ethiopia a couple of years ago through the Aslan Project, where through a mist of tears, I saw her joyfully distributing quilts to the children there. Olivia went from success to success in varsity soccer with her proud family cheering her on and Bill thrived in his work. At last, all was well with the Tomoffs!
In April 2016, cancer struck again, not once but twice, turning Ryan’s world upside down! This time it was a squamous cell carcinoma of the tongue that started off as a canker sore! This cancer, that occurred years after a successful bone marrow transplant that had rendered Ryan disease-free, was a late effect of all the treatment he had received repeatedly for his leukemia since he was two years old, including chemotherapy, cranio-spinal radiation and TBI (total body irradiation) for his bone marrow transplant. It was a devastating diagnosis that resulted in Ryan needing multiple surgeries and effectively learning to speak and eat again. I went to visit Ryan at the University of Maryland where he had the surgery and instead of seeing a defeated soul, I saw a courageous fighter who was determined to put this curve ball behind him.
Lo and behold, it is now more than three years since Ryan had his tongue cancers. His speech is great, he works, is a connoisseur of gourmet food and a sports enthusiast, plus spends his spare time volunteering for childhood cancer organizations. The latter has won him much-deserved recognition and awards from Special Love, Inc. and the Aslan Project!
I continue to see Ryan regularly in the Amey Cancer Survivorship Program at the Children’s Hospital at Sinai in Baltimore. Here he is monitored for multiple late effects of treatment in concert with other subspecialists in Endocrinology, Cardiology, Oral Surgery and Dentistry, Ophthalmology and Dermatology. He is always accompanied by one of his wonderful parents, generally Terri, who still carries her notebook and Ryan’s updated medical records and information that we go over in each appointment. Just this month, I saw him and received the ultimate gift from him—homemade smoked cheese! Ryan is well on his way to becoming an entrepreneur and I look forward to the day I can say I know the Ryan of “Ryan’s Smoked Cheeses!”
In closing, often I am asked why I chose Pediatric Hematology Oncology as a profession, one which is regarded by many as sad and hopeless! All I need to do is look at Ryan, who together with his family conquered the impossible and today focuses only on the future, bringing a message of hope, courage and resilience to so many along the way. The incredible bond of friendship and trust I established with the Tomoffs that first evening at Georgetown 24 years ago has only grown stronger. We have laughed and cried together, rejoiced at successes and grieved for losses. I thank Ryan, Olivia, Terri and Bill for including me in their ever-expanding family and wish them all the happiness in the world!
Aziza Shad, MD
Ellen W.P. Wasserman Chair of Pediatrics
Chief, Pediatric Hematology/Oncology
The Herman & Walter Samuelson Children’s Hospital at Sinai
On January 23, 2024, on Facebook, I shared gratitude for Dr. Aziza Shad for her unparalleled care to our family and all patients and families under her care. I was inspired by a Susan Cain post titled Seven things my father taught me, by example. Her father was a doctor and the list of seven things he taught her was heartwarming and points we should all take to heart. Point number five immediately reminded me of Dr. Shad:
“If you happen to be a doctor, take care of your patients – really take care of them. Study medical journals after dinner, train the next generation of physicians (my father kept teaching until age 81), spend the extra hour to visit the bedside of your patients in the hospital. (Here’s a letter from one of those patients, which we found after my father passed away. He never showed us these things while he was alive.)”
Susan Cain Image – Patient Letter to her Doctor Father
The gratitude I shared in my Facebook share was:
“When I read Susan Cain’s post on Substack, this point, and the letter sent to Susan’s father, it inspired me to intentionally pause and be grateful for Doctor Aziza Shad.
Since 1996, Dr. Shad has been at our family’s side guiding and caring for Ryan Tomoff through his #ChildhoodCancer wars and beyond to monitoring the late effects of his treatments through the years.
The image above IS the essence of expertise, care, and compassion that Dr. Shad has brought to our family and every patient and family blessed to be a recipient of her care.
Please read Susan’s full Substack post and my wish is you can share your #gratitude with someone who made a forever impact in your life 🙏❤️.
Dr. Shad, thank you… the words shared by a patient, in Susan’s post, are beautiful. The Tomoff family carries these sentiments for you:
“How do I start, where do I begin to express my feeling of gratitude. appreciation to a [doctor] that has compassion, knowledge, and the kindest doctor… I had the pleasure to have in our lives.
Your caring, right from the heart, your kindness to always lead us in the right direction. We never thought to get a second opinion. Whatever you advised was good enough for us. BECAUSE YOU CARED, TRULY CARED….” “
Please prioritize 35 minutes to hear Dr. Shad’s perspective on treating her patients and their families. She cares deeply about all whom she is entrusted to care for. In the pediatric world, the child patient and the family must be considered to achieve the optimal outcome of curing a child. Aransas does a beautiful job guiding the conversation, and the entire podcast was an inspiring listen.
In the interview, Dr. Shad discusses why she chose pediatric cancer as a specialty, the founding of The Aslan Project dedicated to pediatric cancer in Ethiopia, and her mission to be accessible 24 hours per day, seven days a week! She is a godsend to our family. Listen in and be inspired – may we all approach our lives and careers to make the most meaningful difference we can.
I recently had a conversation with a friend in an MBA program who was advised by a classmate to lower the bar and focus more on soft skills. While I agree that real skills are critically important, I strongly disagree with the suggestion to lower the bar on learning. My twin brother Don and I are passionate about personal development and relentlessly encouraging others to bring their best selves to the world every day.
This commitment to excellence was solidified for me when my son Ryan was diagnosed with leukemia at age two in 1996. Dr. Aziza Shad, Ryan’s pediatric oncologist, came into our lives and guided us through an incredibly difficult journey. We had to completely trust Dr. Shad and her team to save Ryan’s life. A critical part of that trust was the expectation that she and everyone involved in Ryan’s care was dedicated to bringing their absolute best knowledge, judgment, and effort.
While most of us don’t hold others’ lives in our hands on a daily basis, I believe we should demand the same level of excellence from ourselves in whatever work we do. I owe this to Dr. Shad and the many professionals who exemplify this commitment. Ryan is thriving 27 years later thanks to their dedication and skill.
Dr. Shad’s example has inspired me to always strive to be my best and help others with the knowledge and skills I’ve gained over my lifetime. My wife Terri has also been moved by Dr. Shad’s encouragement to share our family’s story in her memoir. I hope others find inspiration in this message to never settle or get complacent, but to continually learn, prepare, and contribute your talents to the fullest. The world needs you at your best.
Full Original Writing
My twin Don and I embrace a theme in our careers and lives: “Take what you do seriously. Do not take yourself seriously.“
Recently, I had a conversation with a friend in an MBA program, and a classmate suggested, “You are taking the MBA too seriously. You should lower the bar and improve your soft skills.” This friend happens to be a spectacular human being with real (prefer term vs. “soft”) skills that I wish I possessed. I agree that we all must understand the critical importance of real skills, yet a suggestion to lower the bar on learning through the MBA curriculum content? NO.
Don and I are all-in on personal development, and we relentlessly encourage others to be serious about continually learning and bringing their best selves to the world every day. Please be serious and do your best with all learning opportunities you encounter. We must be our best and bring our learning and talents to the world!
“To give anything less than your best is to sacrifice the gift.”
—Steve Prefontaine
“Lowering the bar” means accepting that we can get by and succeed with less effort. We don’t need to be at our best. This sounds crazy to contemplate, doesn’t it? In my world, I expect the best from myself and those I interact with. Let’s pull the thread on this idea to make a compelling and obvious point – in the medical profession, for example, are we accepting of a doctor who has lowered the bar and is not bringing her best talents to serve patients?
On October 17, 1996, our family’s life was forever changed when my son, Ryan, was diagnosed with cancer – Acute Lymphoblastic Leukemia (ALL) at the age of two years and two months. My wife Terri, and I, were stunned, scared, and had no concept of how we could move forward. On Saturday morning, October 19, 1996, Dr. Aziza Shad came into our lives carrying a protocol requiring our authorization for treatment to commence on Monday, October 21, 1996. Dr. Shad gently and caringly stepped through the protocol stages that would require three years and two months to complete and answered our questions. In order to save Ryan’s life, we had no option other than to accept and authorize the protocol.
We quickly understood a few core facts:
We had no control over a complicated childhood cancer world.
Dr. Shad and her team in the pediatric oncology world at Georgetown University Medical Center were our hope for saving Ryan’s life.
We had to trust Dr. Shad completely and partner with her while relentlessly advocating for Ryan.
Part of our trust in Dr. Shad and the medical community was our expectation that she and everyone involved in Ryan’s care was dedicated to staying current and relentlessly preparing to bring their best knowledge and judgment to Ryan and the countless patients whose lives depended on them. Let that sink in – isn’t this what you pray for when you put your trust in your doctors? While many of us are not saving lives on a daily basis, why would we accept less than our best when we live our lives personally and professionally? I have many limitations, but dedicating myself to continual learning, preparation, and bringing my best skills and effort to those counting on me is something I demand of myself. I owe this in honor of Dr. Shad and the many professionals who bring the same commitment to their lives every day.
We are blessed to have Ryan thriving now 27 years later, and Dr. Shad at his and our side guiding his follow-up care. Dr. Shad’s example of expertise, care, and compassion has solidified my determination to bring my best every day and help others with the skills and knowledge I have earned throughout my lifetime.
Terri Tomoff and Dr Aziza Shad – The Focused Fight
I will continue with future posts about Dr. Shad, where I will share the foreword from the book and other sentiments that speak to the incredible doctor and human being that she is.
To close this post, I hope you find inspiration to do everything in your power to be the best person and contributor you can be in your choice of work and how you carry yourself through each day of your life. Do not settle, get complacent, or “lower the bar.”The world needs your contribution!
Terri Tomoff’s passion for quilting took flight in 1989 after taking a class in Ohio. Over the past 35 years, I’ve witnessed her quilting expertise evolve from hand stitching to using a long-arm machine. Terri’s primary love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts.
Her dedication to quilting and sharing joy with others soared when she joined the Southern Comforters Quilt Guild in 1998. Terri’s colorful creations took center stage as the guild’s featured quilter in 2012. Quilting provided solace during our son Ryan’s battle with leukemia, a time she refers to as “Manufacturing Sunshine.”
Inspired by a quilt Ryan received during his 2004 bone marrow transplant, Terri spearheaded an initiative for the guild to donate lap quilts to childhood cancer patients. The beneficiaries now span from Georgetown University Medical Center to hospitals in Baltimore, Ethiopia, Puerto Rico, and even families affected by the 2023 Maui fires. Terri has also created quilts to raise funds for charities supporting children with cancer.
Beyond her charitable work, Terri generously gifts quilts to family and friends. Olivia, Ryan, and I treasure the t-shirt quilts she’s made, commemorating special moments in our lives. Terri’s commitment to continuous learning and finding better ways to create her quilted works of art is awe-inspiring.
I marvel at the extensive “body of work” Terri has built through quilting, just one facet of her multi-talented life. Her tireless dedication to family, friends, and passions is superhuman. Terri, thank you for manufacturing sunshine and generously sharing your gifts with the world.
Full Original Writing
Terri Tomoff loves quilting and everything that goes along with it…the hunt for beautiful fabric, learning continuously, the creative art of quilting, and the camaraderie of sharing her love of the craft with like-minded people. In 1989, she took a quilting class in North Olmsted, Ohio, and the fuse was lit. Over the past 35 years, I have had the gift of having a front-row seat to witness the development and refinement of her quilting work.
Today, her primary quilting love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts for family, friends, and customers. Her quilting expertise has evolved from hand quilting in the 1990s to using a full long-arm quilting machine to accelerate her work once the creative design is completed. Yet, her quilting passion goes far beyond the business side of her efforts. Her love of quilting and sharing the joy with others took off in 1998 when she joined the Southern Comforters Quilt Guild in Bowie, Maryland.
“Quilting consumes me.” Quote from Terri when the local newspaper featured her after she was selected as the Featured Quilter for the 2012 Southern Comforters Quilt Show. The text of the article:
March 8, 2012
Crofton-West County Gazette
Quilting Woman’s Passion
“Inspired by Betsy Ross and the bicentennial, Terri Tomoff took on her first fabric project in junior high, when she crocheted an outline of the original 13 colonies for a school project.
She was instantly intrigued by the material arts and has since created more than 200 quilts.
As the featured quilter for the Southern Comforters Annual Quilt Show, Terri’s colorful creations will take center stage at the show, which will be held March 24 and 25 at C. Elizabeth Rieg School in Bowie.
Terri started quilting as a young adult after taking a sampler quilt class in her home state of Ohio but put her hobby aside to focus on her marriage, children and career. Soon after moving to Crofton in 1996, Terri’s 2-year-old son Ryan was diagnosed with cancer and that altered her course even further. When Ryan was able to start pre-school, Terri met a fellow mom who was a member of the Southern Comforters Quilt Guild and invited her to join.
“That was in 1998 and I haven’t missed too many meetings since then,” said Terri. “Quilts consume me.” The quilting guild gets together twice a month to hone their skills, share ideas and serve the community.
Terri said that during her son’s nine-year battle with leukemia, she started making and donating quilts to sup-port cancer research and the medical centers that treated Ryan. “Instead of donating money, I made quilts that were then raffled off,” she said.
Terri also made more than 200 quilt bags gifting them to everyone from the doctors and hospital staff to the parking attendants.
At the upcoming quilt show, 30 to 40 of Terri’s quilts will be on display.
One of her favorites, which will be featured at the show, combines varying shades of solid pink and yellow fabrics and a complementary floral fabric.
“I love that quilts have a dual purpose since they are designed for both beauty and comfort,” said Terri. “I also love to see the joy in people’s faces when they receive a hand-made quilt and I think it is an honor to receive one. They are a labor of love – you just can’t knock one out.”
Terri said that she was humbled to be selected as the featured quilter for this year’s annual show and that she looks forward to continuing to color the world with her quilts.”
March 8, 2012 – Terri Tomoff Featured Quilter – Article in Crofton-West County Gazette
Terri embraced the quilting community and her love of quilting with fervor. Everyone should have the gift in their life of a hobby or passion that brings out their creativity and desire to improve and add value to the world. Terri found this with quilting. Her dedication and growth in the world of quilting is inspiring to all who know her. She wants to contribute to bringing joy and comfort to others with each lovingly created quilt.
Ideas are Born
Manufacturing Sunshine
Terri often tells how the quilting process helped soothe her and brighten her days at Georgetown Hospital when Ryan was an inpatient for his leukemia treatment protocols. Many long days and weeks were spent in the hospital from late 1996 through 2004. A makeshift station would be set up in Ryan’s hospital room, and when she could, Terri let her mind work with the creative side of piecing together fabrics that involved bright colors. Years later in 2017, she would reflect back and refer to those times that she was “Manufacturing Sunshine.” This is now the title of her website blog page and a theme we hold close to our hearts in our family.
March 2017 – Ryan and Terri Tomoff with her Manufacturing Sunshine Quilt
Community Quilts Bringing Comfort to Childhood Cancer Children
In late October 2004, when Ryan was admitted to the PBMT floor 5200 at Duke University to begin his bone marrow transplant process, he received a quilt incorporating blank green and blue blocks for nurses, family, and others to write notes to Ryan. I remember discussing with Terri, “This quilt is a tremendous gift for the patient and the family. They are being seen and know that people care.” The act of this gift of a lap quilt brought comfort during a time of extreme concern and stress.
March 21, 2024 – 29-year-old Ryan Tomoff with Quilt provided at Transplant in November 2004
When we returned to Maryland in 2005, Terri inquired about the possibility of the Southern Comforters Community Quilts charitable initiative, including lap quilts to Georgetown Hospital (where Ryan was treated when we were home in Maryland) to be given to newly diagnosed childhood cancer children. The idea was warmly embraced, and Terri was leading the effort of providing quilts to the Georgetown Pediatric Oncology Clinic! A beautiful idea noted at Duke University inspired a movement in the Washington DC region. In 2015, Terri discovered and shared with me the concept of Post-Traumatic Growth. Terri shared this in her blog from 2019. We were excited to have a defined term for our emotions and desire to make a difference for others chosen to travel the path Ryan, and our family were on.
The Soothing Power of a Quilt Expands
In addition to donating quilts to Georgetown Hospital, Terri led the Southern Comforters to share the comfort internationally. She knew firsthand the comfort of a thoughtful gift that a lap quilt could bring to a child fighting cancer and their families. She was a force of nature determined to leverage her love of quilting to help others.
The beneficiaries of Terri’s and The Southern Comforters Quilt Guild efforts, over almost 20 years, now include:
A touching moment happened with a quilt recipient from a family who lost their home in the Lahaina fire, as noted in point 5 above. A donated quilt had the quilter’s name on the back of the quilt, and the recipient sent the following lovely message via Facebook Messenger. Terri shared in her blog:
“After our guild meeting this past week, Joan approached me with a big smile and told me she had something special to share. Her quilt pictured below was given to a family that found her through Facebook and recently wrote her this lovely message:
“Wanted to say Hi and Aloha! I lost my home in the Lahaina fire on Maui. I was fortunate to pick out your quilt (UFO Challenge), and I just wanted to say a heartfelt thank you!””
In addition to the quilt donation efforts above, Terri has also created quilts for auction or has raffled quilts to benefit charities focused on efforts in the fight against childhood cancer. Charities benefited include:
Coordinating her t-shirt quilt business and the incredible charity initiatives shared above, can she make other efforts to spread her talents and love of quilts into the world? The answer is a resounding YES! Oliva, Ryan, and I have been the recipients of t-shirt quilts that we treasure, countless “baby quilts” have been gifted, and then she completes special projects for gifts (i.e., Tote Bags) and even tackles unique customer projects that showcase her broad spectrum of talent and creativity in the quilting world!
Terri is a continual learner and embraces “finding a better way” to be more effective with her quilting efforts. Her mission is to build space for the creative aspect of quilting, which she loves. Whether contemplating a collection of t-shirts, a charitable effort, or other unique projects, she experiences joy in creating a work of art that can be a lifetime gift to someone. The recipients of her art are often stunned at the beautiful work she delivers!
Within our family, Olivia, Ryan, and I all have t-shirt quilts that Terri lovingly made for us from activities that have defined a memorable aspect of our lives. My two quilts embrace my love of sports and competitive distance running memories. Olivia has a collection of memories from her competitive soccer years, and Ryan has a Special Love Camp Fantastic theme and sports memories.
June 2020 – Ohio University, Distance Running, and Other Sports Memories
I am thrilled that Terri found the art of quilting and savor the joy, purpose, and fulfillment it has brought to her life and the lives of others. Her talents are a gift to the world and she shares generously!
While writing this #CelebratingOthers, I marvel at the “body of work” that Terri has built with her quilting. Then, reflecting more broadly, I remind myself her quilting is only one aspect of her full, robust life. Terri is a sister, spouse, Mom, a dear friend to many, and is talented and dedicated to her life passions. The same commitment she brings to her quilting goes into everything she does. The tireless dedication to her family, supporting my efforts, and caring for Olivia and Ryan are superhuman! She is also the author ofThe Focused Fight, a memoir of Ryan’s wars with 3x childhood cancer and 2x adult cancers over the past 27+ years.
Terri, thank you for all you do for me, our family, and everyone you come in contact with through your quilting, writing, and sharing your passions with the world. Indeed, you are “Manufacturing Sunshine” for yourself and others!
