The Focused Fight: How Dr. Aziza Shad’s Guidance Fueled Our Family’s Cancer Battle and Personal Growth

Summary Overview – Collaboration with Claude.AI

I recently had a conversation with a friend in an MBA program who was advised by a classmate to lower the bar and focus more on soft skills. While I agree that real skills are critically important, I strongly disagree with the suggestion to lower the bar on learning. My twin brother Don and I are passionate about personal development and relentlessly encouraging others to bring their best selves to the world every day.

This commitment to excellence was solidified for me when my son Ryan was diagnosed with leukemia at age two in 1996. Dr. Aziza Shad, Ryan’s pediatric oncologist, came into our lives and guided us through an incredibly difficult journey. We had to completely trust Dr. Shad and her team to save Ryan’s life. A critical part of that trust was the expectation that she and everyone involved in Ryan’s care was dedicated to bringing their absolute best knowledge, judgment, and effort.

While most of us don’t hold others’ lives in our hands on a daily basis, I believe we should demand the same level of excellence from ourselves in whatever work we do. I owe this to Dr. Shad and the many professionals who exemplify this commitment. Ryan is thriving 27 years later thanks to their dedication and skill.

Dr. Shad’s example has inspired me to always strive to be my best and help others with the knowledge and skills I’ve gained over my lifetime. My wife Terri has also been moved by Dr. Shad’s encouragement to share our family’s story in her memoir. I hope others find inspiration in this message to never settle or get complacent, but to continually learn, prepare, and contribute your talents to the fullest. The world needs you at your best.

Full Original Writing

My twin Don and I embrace a theme in our careers and lives: “Take what you do seriously. Do not take yourself seriously.

Recently, I had a conversation with a friend in an MBA program, and a classmate suggested, “You are taking the MBA too seriously. You should lower the bar and improve your soft skills.” This friend happens to be a spectacular human being with real (prefer term vs. “soft”) skills that I wish I possessed. I agree that we all must understand the critical importance of real skills, yet a suggestion to lower the bar on learning through the MBA curriculum content? NO.

Don and I are all-in on personal development, and we relentlessly encourage others to be serious about continually learning and bringing their best selves to the world every day. Please be serious and do your best with all learning opportunities you encounter. We must be our best and bring our learning and talents to the world!

“To give anything less than your best is to sacrifice the gift.”

—Steve Prefontaine

Lowering the bar” means accepting that we can get by and succeed with less effort. We don’t need to be at our best. This sounds crazy to contemplate, doesn’t it? In my world, I expect the best from myself and those I interact with. Let’s pull the thread on this idea to make a compelling and obvious point – in the medical profession, for example, are we accepting of a doctor who has lowered the bar and is not bringing her best talents to serve patients?

On October 17, 1996, our family’s life was forever changed when my son, Ryan, was diagnosed with cancer – Acute Lymphoblastic Leukemia (ALL) at the age of two years and two months. My wife Terri, and I, were stunned, scared, and had no concept of how we could move forward. On Saturday morning, October 19, 1996, Dr. Aziza Shad came into our lives carrying a protocol requiring our authorization for treatment to commence on Monday, October 21, 1996. Dr. Shad gently and caringly stepped through the protocol stages that would require three years and two months to complete and answered our questions. In order to save Ryan’s life, we had no option other than to accept and authorize the protocol.

We quickly understood a few core facts:

  • We had no control over a complicated childhood cancer world.
  • Dr. Shad and her team in the pediatric oncology world at Georgetown University Medical Center were our hope for saving Ryan’s life.
  • We had to trust Dr. Shad completely and partner with her while relentlessly advocating for Ryan.

Part of our trust in Dr. Shad and the medical community was our expectation that she and everyone involved in Ryan’s care was dedicated to staying current and relentlessly preparing to bring their best knowledge and judgment to Ryan and the countless patients whose lives depended on them. Let that sink in – isn’t this what you pray for when you put your trust in your doctors? While many of us are not saving lives on a daily basis, why would we accept less than our best when we live our lives personally and professionally? I have many limitations, but dedicating myself to continual learning, preparation, and bringing my best skills and effort to those counting on me is something I demand of myself. I owe this in honor of Dr. Shad and the many professionals who bring the same commitment to their lives every day.

We are blessed to have Ryan thriving now 27 years later, and Dr. Shad at his and our side guiding his follow-up care. Dr. Shad’s example of expertise, care, and compassion has solidified my determination to bring my best every day and help others with the skills and knowledge I have earned throughout my lifetime.

With Dr. Shad’s years-long encouragement, Terri published her memoir of Ryan’s five-time cancer battles in her book The Focused Fight: A Childhood Cancer Journey from Mayhem to Miracles in March 2021. Dr. Shad kindly wrote a foreword for the book!

Terri Tomoff and Dr Aziza Shad – The Focused Fight

I will continue with future posts about Dr. Shad, where I will share the foreword from the book and other sentiments that speak to the incredible doctor and human being that she is.

To close this post, I hope you find inspiration to do everything in your power to be the best person and contributor you can be in your choice of work and how you carry yourself through each day of your life. Do not settle, get complacent, or “lower the bar.” The world needs your contribution!

Stitching Together Love and Comfort: The Inspiring Quilting Journey of Terri Tomoff

Summary Overview – Collaboration with Claude.AI

Terri Tomoff’s passion for quilting took flight in 1989 after taking a class in Ohio. Over the past 35 years, I’ve witnessed her quilting expertise evolve from hand stitching to using a long-arm machine. Terri’s primary love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts.

Her dedication to quilting and sharing joy with others soared when she joined the Southern Comforters Quilt Guild in 1998. Terri’s colorful creations took center stage as the guild’s featured quilter in 2012. Quilting provided solace during our son Ryan’s battle with leukemia, a time she refers to as “Manufacturing Sunshine.”

Inspired by a quilt Ryan received during his 2004 bone marrow transplant, Terri spearheaded an initiative for the guild to donate lap quilts to childhood cancer patients. The beneficiaries now span from Georgetown University Medical Center to hospitals in Baltimore, Ethiopia, Puerto Rico, and even families affected by the 2023 Maui fires. Terri has also created quilts to raise funds for charities supporting children with cancer.

Beyond her charitable work, Terri generously gifts quilts to family and friends. Olivia, Ryan, and I treasure the t-shirt quilts she’s made, commemorating special moments in our lives. Terri’s commitment to continuous learning and finding better ways to create her quilted works of art is awe-inspiring.

I marvel at the extensive “body of work” Terri has built through quilting, just one facet of her multi-talented life. Her tireless dedication to family, friends, and passions is superhuman. Terri, thank you for manufacturing sunshine and generously sharing your gifts with the world.

Full Original Writing

Terri Tomoff loves quilting and everything that goes along with it…the hunt for beautiful fabric, learning continuously, the creative art of quilting, and the camaraderie of sharing her love of the craft with like-minded people. In 1989, she took a quilting class in North Olmsted, Ohio, and the fuse was lit. Over the past 35 years, I have had the gift of having a front-row seat to witness the development and refinement of her quilting work.

Today, her primary quilting love is creating one-of-a-kind “treasured keepsakes” t-shirt quilts for family, friends, and customers. Her quilting expertise has evolved from hand quilting in the 1990s to using a full long-arm quilting machine to accelerate her work once the creative design is completed. Yet, her quilting passion goes far beyond the business side of her efforts. Her love of quilting and sharing the joy with others took off in 1998 when she joined the Southern Comforters Quilt Guild in Bowie, Maryland.

Quilting consumes me.” Quote from Terri when the local newspaper featured her after she was selected as the Featured Quilter for the 2012 Southern Comforters Quilt Show. The text of the article:

March 8, 2012

Crofton-West County Gazette

Quilting Woman’s Passion

“Inspired by Betsy Ross and the bicentennial, Terri Tomoff took on her first fabric project in junior high, when she crocheted an outline of the original 13 colonies for a school project.

She was instantly intrigued by the material arts and has since created more than 200 quilts.

As the featured quilter for the Southern Comforters Annual Quilt Show, Terri’s colorful creations will take center stage at the show, which will be held March 24 and 25 at C. Elizabeth Rieg School in Bowie.

Terri started quilting as a young adult after taking a sampler quilt class in her home state of Ohio but put her hobby aside to focus on her marriage, children and career. Soon after moving to Crofton in 1996, Terri’s 2-year-old son Ryan was diagnosed with cancer and that altered her course even further. When Ryan was able to start pre-school, Terri met a fellow mom who was a member of the Southern Comforters Quilt Guild and invited her to join.

“That was in 1998 and I haven’t missed too many meetings since then,” said Terri. “Quilts consume me.” The quilting guild gets together twice a month to hone their skills, share ideas and serve the community.

Terri said that during her son’s nine-year battle with leukemia, she started making and donating quilts to sup-port cancer research and the medical centers that treated Ryan. “Instead of donating money, I made quilts that were then raffled off,” she said.

Terri also made more than 200 quilt bags gifting them to everyone from the doctors and hospital staff to the parking attendants.

At the upcoming quilt show, 30 to 40 of Terri’s quilts will be on display.

One of her favorites, which will be featured at the show, combines varying shades of solid pink and yellow fabrics and a complementary floral fabric.

“I love that quilts have a dual purpose since they are designed for both beauty and comfort,” said Terri. “I also love to see the joy in people’s faces when they receive a hand-made quilt and I think it is an honor to receive one. They are a labor of love – you just can’t knock one out.”

Terri said that she was humbled to be selected as the featured quilter for this year’s annual show and that she looks forward to continuing to color the world with her quilts.”

March 8, 2012 – Terri Tomoff Featured Quilter – Article in Crofton-West County Gazette

Terri embraced the quilting community and her love of quilting with fervor. Everyone should have the gift in their life of a hobby or passion that brings out their creativity and desire to improve and add value to the world. Terri found this with quilting. Her dedication and growth in the world of quilting is inspiring to all who know her. She wants to contribute to bringing joy and comfort to others with each lovingly created quilt.

Ideas are Born

Manufacturing Sunshine

Terri often tells how the quilting process helped soothe her and brighten her days at Georgetown Hospital when Ryan was an inpatient for his leukemia treatment protocols. Many long days and weeks were spent in the hospital from late 1996 through 2004. A makeshift station would be set up in Ryan’s hospital room, and when she could, Terri let her mind work with the creative side of piecing together fabrics that involved bright colors. Years later in 2017, she would reflect back and refer to those times that she was “Manufacturing Sunshine.” This is now the title of her website blog page and a theme we hold close to our hearts in our family.

March 2017 – Ryan and Terri Tomoff with her Manufacturing Sunshine Quilt

Community Quilts Bringing Comfort to Childhood Cancer Children

In late October 2004, when Ryan was admitted to the PBMT floor 5200 at Duke University to begin his bone marrow transplant process, he received a quilt incorporating blank green and blue blocks for nurses, family, and others to write notes to Ryan. I remember discussing with Terri, “This quilt is a tremendous gift for the patient and the family. They are being seen and know that people care.” The act of this gift of a lap quilt brought comfort during a time of extreme concern and stress.

March 21, 2024 – 29-year-old Ryan Tomoff with Quilt provided at Transplant in November 2004

When we returned to Maryland in 2005, Terri inquired about the possibility of the Southern Comforters Community Quilts charitable initiative, including lap quilts to Georgetown Hospital (where Ryan was treated when we were home in Maryland) to be given to newly diagnosed childhood cancer children. The idea was warmly embraced, and Terri was leading the effort of providing quilts to the Georgetown Pediatric Oncology Clinic! A beautiful idea noted at Duke University inspired a movement in the Washington DC region. In 2015, Terri discovered and shared with me the concept of Post-Traumatic Growth. Terri shared this in her blog from 2019. We were excited to have a defined term for our emotions and desire to make a difference for others chosen to travel the path Ryan, and our family were on.

The Soothing Power of a Quilt Expands

In addition to donating quilts to Georgetown Hospital, Terri led the Southern Comforters to share the comfort internationally. She knew firsthand the comfort of a thoughtful gift that a lap quilt could bring to a child fighting cancer and their families. She was a force of nature determined to leverage her love of quilting to help others.

The beneficiaries of Terri’s and The Southern Comforters Quilt Guild efforts, over almost 20 years, now include:

  1. Georgetown University Medical Center in Washington, DC.
  2. LifeBridge Sinai Hospital of Baltimore in Maryland.
  3. Mother Teresa Home for Children with Cancer – The Aslan Project in Ethiopia
  4. San Jorge Children’s Hospital in Puerto Rico.
  5. Maui, Hawaii Families Stricken by Fires that Devastated Lahaina on August 8, 2023
  6. Terri Tomoff and Jodie Smith visit the Maui Quilt Shop on September 11, 2023

A touching moment happened with a quilt recipient from a family who lost their home in the Lahaina fire, as noted in point 5 above. A donated quilt had the quilter’s name on the back of the quilt, and the recipient sent the following lovely message via Facebook Messenger. Terri shared in her blog:

“After our guild meeting this past week, Joan approached me with a big smile and told me she had something special to share. Her quilt pictured below was given to a family that found her through Facebook and recently wrote her this lovely message:

“Wanted to say Hi and Aloha! I lost my home in the Lahaina fire on Maui. I was fortunate to pick out your quilt (UFO Challenge), and I just wanted to say a heartfelt thank you!””

In addition to the quilt donation efforts above, Terri has also created quilts for auction or has raffled quilts to benefit charities focused on efforts in the fight against childhood cancer. Charities benefited include:

  1. Special Love for children with cancer.
  2. Just Tryan It provides financial assistance to families with a child in treatment for pediatric cancer.
  3. Mattie Miracle Cancer Foundation addresses psychosocial support for childhood cancer children and their families.

The Rest of the Story

Coordinating her t-shirt quilt business and the incredible charity initiatives shared above, can she make other efforts to spread her talents and love of quilts into the world? The answer is a resounding YES! Oliva, Ryan, and I have been the recipients of t-shirt quilts that we treasure, countless “baby quilts” have been gifted, and then she completes special projects for gifts (i.e., Tote Bags) and even tackles unique customer projects that showcase her broad spectrum of talent and creativity in the quilting world!

Terri is a continual learner and embraces “finding a better way” to be more effective with her quilting efforts. Her mission is to build space for the creative aspect of quilting, which she loves. Whether contemplating a collection of t-shirts, a charitable effort, or other unique projects, she experiences joy in creating a work of art that can be a lifetime gift to someone. The recipients of her art are often stunned at the beautiful work she delivers!

Within our family, Olivia, Ryan, and I all have t-shirt quilts that Terri lovingly made for us from activities that have defined a memorable aspect of our lives. My two quilts embrace my love of sports and competitive distance running memories. Olivia has a collection of memories from her competitive soccer years, and Ryan has a Special Love Camp Fantastic theme and sports memories.

June 2020 – Ohio University, Distance Running, and Other Sports Memories

I am thrilled that Terri found the art of quilting and savor the joy, purpose, and fulfillment it has brought to her life and the lives of others. Her talents are a gift to the world and she shares generously!

While writing this #CelebratingOthers, I marvel at the “body of work” that Terri has built with her quilting. Then, reflecting more broadly, I remind myself her quilting is only one aspect of her full, robust life. Terri is a sister, spouse, Mom, a dear friend to many, and is talented and dedicated to her life passions. The same commitment she brings to her quilting goes into everything she does. The tireless dedication to her family, supporting my efforts, and caring for Olivia and Ryan are superhuman! She is also the author of The Focused Fight, a memoir of Ryan’s wars with 3x childhood cancer and 2x adult cancers over the past 27+ years.

Terri, thank you for all you do for me, our family, and everyone you come in contact with through your quilting, writing, and sharing your passions with the world. Indeed, you are “Manufacturing Sunshine” for yourself and others!

Learn more about Terri at TerriTomoff.com ❤️.

The Virtually No One Community: Embracing a Life with Less E-MAIL | Inspired by Luiz Suarez

Summary Overview – Collaboration with Claude.AI

In this blog post, Don and I champion eliminating email from one’s personal and professional life to reclaim precious time and improve productivity. My twin (#TwinzTalk) Don and I were inspired by Luis Suarez, who successfully gave up corporate email in 2008 while working at IBM. Luis argues that email is a broken model of communication and collaboration that consumes too much time and buries important information.

We suggest that individuals can enjoy several benefits by consciously reducing email usage and adopting alternative collaboration tools like Slack or Microsoft Teams, enabling increased transparency, reduced spam and phishing risks, and more time for learning, personal growth, and family. We recommend starting with a hybrid approach. For example, consider limiting email to two 15-minute sessions per day to gradually transition away from email dependency.

Our post references Suarez’s journey and insights shared in an openSAP podcast. Suarez emphasizes the importance of individual action in breaking the email chain, openly sharing knowledge, and admitting that email overuse is a problem. He also highlights the challenges of transitioning from closed to open communication and the potential for AI to eliminate mundane tasks.

Our blog post serves as a rallying cry for individuals to join the “virtually no-one community,” reclaim control of their time, and enhance productivity by reducing email usage. We believe that by embracing this mindset shift and finding better ways to collaborate, people can build more fulfilling lives and become more effective contributors in all aspects of their lives.

Full Original Writing – Reclaim Your Time by Going E-Mail-less

Don and I are on a continual quest to find smarter and better working methods. When we can “find a better way,” we are excited to try [primarily] technology tools that might help us move in ways that enhance our ability to contribute to our worlds and improve our ability to reclaim more of our most precious asset – the time in our lives. Since December 2022, much of our efforts have been dedicated to studying and working with the potential of GenAI and ChatGPT. Yet this topic, which we feel is one of the most compelling in our now 40+ year careers, is only one of a long string of adoptions that have provided us a disproportionate advantage in our careers and lives.

There’s a way to do it better – find it.” -Thomas Edison

In 2016, we were introduced to the collaboration platform Slack. Don and I immediately recognized the potential to reduce EMAIL use and create transparency around documentation and conversations among colleagues. We were off and running, working with the platform and encouraging others to embrace the potential that we felt was compelling. In hindsight, our vision was correct. Slack and, later, Microsoft Teams have become ubiquitous in the working world. However, almost seven years later, EMAIL seems to be raging as the go-to communication tool for many people and businesses.

Don and I felt as though we were on an island with our tenacity to vastly eliminate the use of EMAIL in our lives. Being on “the road less traveled” was a common feeling we experienced while pursuing smarter and more effective ways of working and living. We grew to enjoy living in the long tail of technology adoption.

If almost anyone is asked, “Do you struggle with email and the time required to manage it?” most people would respond emphatically, “YES!” Yet, because we all are familiar with this standard in our businesses and lives, we accept the burden and time-suck imposed upon us. Accepting a known inconvenience that everyone else is managing lets us off the hook of needing to confront the challenge of changing how we work. Instead, often, we complain and keep marching forward with the status quo. Don and I run toward finding a better way. We like to acknowledge and embrace that we are members of the “Virtually No One Community.”

A community of practice that I participate in is Harold Jarche’s Perpetual Beta Coffee Club (PBCC). A member of that community, Luis Suarez, posted on LinkedIn on February 15, 2024, that he was celebrating his 16-year anniversary of “surviving corporate life without using email!” What a radical (inspiring to the Twinz) thought and initiative to embark upon in 2008. We proudly count Luis as a member of our “virtually no-one community!”

Why is the elimination of email such a big deal? The number one encouragement we implore is, “You reclaim time in your life to dedicate yourself to matters of greater importance – higher quality work time for learning and growing, and most importantly, time in your personal life for your family and other priorities.” Being a more effective, efficient, and contributing person across all aspects of life is compelling. Who does not want to be a more optimal performer?

In this podcast episode, openSAP Podcasts – Education NewsCast – Episode 277, “Insights on NoEmail and distributed, remote work with Luis Suarez,” Luis talks with Thomas Jenewein about his decision to choose to eliminate the use of email in his corporate life. If you think, “My company is too big, and this would not be possible in my case, Luiz made his decision when he was working with IBM!

Indeed, there is a better way, and Luiz shares his insights on making #NoEmail a reality in your world. At 23:00 minutes, Luiz shares his thoughts about starting with a hybrid solution to reducing email. This is the solution that Don and I embraced starting in 2016. Currently, I prioritize two 15-minute daily periods to review and clear email. My goal is to be intentional with my email review and not exceed 30 minutes per day. In addition to reclaiming precious time in our days (mentioned above), a few additional compelling benefits for us include:

  1. Using a collaboration tool (i.e., Slack or MS Teams), sharing and transparency “for all to see” enhances access, and information is not buried in email.
  2. EMAIL spam and phishing risks are eliminated.
  3. Time saved from email management is available for prioritizing more important personal or professional matters, such as learning, development, and personal growth.

On February 15 and 18, 2008, Luiz shared blog posts about his decision to eliminate email. It was a courageous move that the mainstream world thought ludicrous. One reaction to his announcement was, “You will be fired within two weeks.”

I highly encourage listening to the full podcast discussion. Luiz stood up and said, “Enough” to the challenge that email brings to so many of us. May this post and his emphasis throughout the podcast inspire you to take action and reclaim your precious time! As Don and I did, starting in earnest in 2016, we adopted a conscious mindset to reduce and control the use of email. A hybrid approach has worked for us and changed our lives – personally and professionally!

Below are several timestamps in the podcast that were notable in my listening, but please listen to the full podcast!

  1. 3:00 – Why no email?
  2. 4:15 – Email is a broken model of communication and collaboration.
  3. 5:45 – Two different kinds of reactions. First, “You will be fired within two weeks.” Note – Luis was employed with IBM when he implemented his decision. He was NOT fired within two weeks.
  4. 8:10 – Now, in 2024, receive EIGHT emails per week. EIGHT!
  5. 9:10 – Myth of Inbox Zero.
  6. 9:40 – If you really want to reduce email, YOU, you, the individual, need to stop using email first. Break the chain.
  7. 10:20 – Why am I doing it?
  8. 13:30 – Study how you use email (to begin the process of elimination – small steps).
  9. 16:00 – Openness and transparency using different tools.
  10. 17:00 – My knowledge is not my knowledge. It’s everyone’s knowledge.
  11. 18:00 – Hoarding knowledge in email. Why?
  12. 19:50 – YOU are much more powerful if you share your knowledge with others.
  13. 20:35 – Reduce unnecessary workloads. Ask why, why…
  14. 23:00 – Hybrid solution – less email and use other tools allowing transparency. This is a great starting point.
  15. 26:20 – In your email inbox, you cannot scale…
  16. 31:45 – Change is hard…
  17. 37:10 – The transition from closed to open is a very challenging shift to make. Everyone wants to be an expert.
  18. 39:15 – Hiding in your inbox is not going to take you anywhere.
  19. 41:30 – Start with admitting, “I do have a problem.”
  20. 42:00 – GenAI helps get rid of mundane tasks. Why not eliminate mundane tasks? Hard stop. There is no need for AI in this case!
  21. 45:20 – We need to take back control of how we do work.

Join the movement and build a more productive and fulfilling life for yourself. Thank you, Luiz, for taking your position in 2008 and living true to your mission. You have inspired the twinz and shown the world what is possible. There is a better way – and you have found it!

Bonus – please read the following media coverage of Luis’s initiative to eliminate EMAIL:

I Freed Myself From E-Mail’s Grip – New York Times June 29, 2008

IBM Gives Birth to Amazing E-Mail-less Man – WIRED January 16, 2012

#TwinzTalk Life Advice and Lessons Learned

On December 3, 2023, I gifted my twin brother Don my unpublished memoir Double Vision: Seeing Life Through Twin Eyes. The book led with advice and life lessons we have learned through our careers in business and working closely with each other – as only a twin could do. Directly from the book, I share the following:

Book Back Cover Blurb

In collaboration with ChatGPT, the back cover blurb for the book sets the context of the gift I have received by the good fortune to share my life with a twin brother:

In his reflections, author Bill Tomoff delves into the profound bond he shares with his twin brother Don. Beginning their journey together in 1958, Bill and Don have navigated the complexities of life, intertwining their personal and professional paths in an extraordinary dance of support, competition, and growth.

This book is a heartfelt tribute to a relationship that exemplifies resilience and mutual inspiration. Through anecdotes from their childhood to their careers in accounting and technology, Bill paints a vivid portrait of a life enriched by Don’s presence. Their story is one of shared trials and triumphs, a testament to the unique connection between twins and the strength of having a constant ally.

Bill’s reflections are a chronicle of twinhood and a celebration of gratitude. He credits Don’s influence for much of his personal and professional development, underscoring the importance of support systems in achieving success. This book is a compelling narrative of two lives beautifully interwoven, a journey of learning, adaptation, and relentless pursuit of excellence, made possible by the unwavering bond between twin brothers.

Advice and Life Lessons Learned from the Twinz

Throughout our lives and careers, Don and I are grateful to have learned many lessons that have helped guide our approach to our worlds. We hope some of the points noted below will resonate with you and help you “level up” and achieve greater fulfillment and success.

A great joy in our lives is when we can share and help others through our own life experiences. If any of these tips resonate with you, please share them in your world!

  1. Do your best: Your best is all anyone can ask.
  2. Play the infinite game: Be aware of the game you are playing.
  3. Don’t let work get in the way of progress.” – Don Tomoff
  4. Be gentle. Be kind – you never know what someone is going through.” – Bill Tomoff
  5. Help others: In every interaction, think “help this person.” – inspiration from Bruce Kasanoff
  6. Invest in yourself: Your time and resources. Prioritize personal development.
  7. Read. Read:Not all readers are leaders, but all leaders are readers.” – Harry S. Truman.
  8. You will fail: You will make mistakes. Learn from these moments.
  9. Learn from other people’s mistakes. Charlie Munger’s encouragement.
  10. Be humble and carry a beginner’s (always learning) mindset.
  11. Live a life of kindness and gratitude and express appreciation to others.
  12. Send handwritten thank you notes: Expressing appreciation for family, friends, colleagues, customers, and others who help your journey through life is a superpower.
  13. Generously share your knowledge and skills.
  14. Live with an abundance mindset – not a scarcity (win-lose) mindset. There is room for everyone to win.
  15. Embrace a growth mindset vs. a fixed mindset.
  16. Do not gossip, judge others, or share unwanted opinions.
  17. Lead by example.
  18. Change yourself to change others.
  19. People need people: Remember the African proverb – “If you want to go fast, go alone. If you want to go far, go together.
  20. Embrace a morning routine of quiet time for reading and contemplation.
  21. Be humble, be curious, and not judgemental – always be learning.
  22. Understand the strength in these three words: “I don’t know.”
  23. In your actions and daily life – “leave it better than you found it.” For example – see Bill Tomoff’s departing note to colleagues at the Cleveland Cavaliers in 2014.
  24. Take what you do seriously. Do not take yourself seriously.
  25. Care – about doing your best, helping others, personal development, doing good, and being kind to yourself and others in your world.
  26. Work to deserve respect, trust, success, etc. – while we do not control external factors, we CAN live to enhance our lives and deserve the desired outcome.
  27. Participate in Communities of Practice. Bill Tomoff’s blog “Navigating New Horizons: Social Media to Communities of Practice.”
  28. To be continued (the learning and growth never stops…)

Navigating New Horizons: Social Media to Communities of Practice

Executive Summary – Collaboration with ChatGPT

Since 2009, my twin, Don, and I have been captivated by the potential of social media, using it to foster our personal and professional growth and share insights through initiatives like #TwinzTalk and #TwinsTechTip. Our journey on these platforms laid the groundwork for a deeper exploration into specialized communities of practice (COPs), a transition inspired by Seth Godin’s 2020 blog on “A Community of Practice.”

My wife, Terri, and I embarked on a COP new venture, starting with a writing community group in 2020 during the COVID-19 pandemic. These focused communities have been a wellspring of learning and growth and building new connections and knowledge beyond the broader platforms available through social media. Influential figures like Tanmay Vora, Rajesh Setty, and Harold Jarche have been instrumental in this journey, inspired by Tanmay’s work on leadership and learning, which deeply resonated with me.

This shift to more intimate COPs has been transformative, aligning with the principle “to whom much is given, much will be required” (Luke 12:48). It echoes the support and kindness my family experienced during my son Ryan’s cancer battles, a blessing I am committed to paying forward. The journey through COPs and virtual communities has been profound, reminding us of our responsibility to contribute and grow within these nurturing spaces and our broader network when possible. I embrace the requirement that my talents and gifts must be shared with my broader network – a network that is exponentially larger through the availability of social media and COPs.

“To give anything less than your best is to sacrifice the gift.” 

–Steve Prefontaine

Original Reflection

I have separately written about my appreciation of participating in Communities of Practice (COP). I am developing a blog post that takes a deeper dive into how my wife, Terri, and I have been encouraged and inspired through our involvement in various communities that started in June 2020.

My contemplation about my involvement in COPs lifts me up. I am grateful to many wonderfully talented, generous, and kind participants who have helped me learn and grow. The community’s participants care about developing their craft and helping others on their path. The environment is enriching.

Before joining a specific COP (Writing in Community was my initial participation), I felt a “looser,” yet similar, connection through many social media relationships that have developed over the years. I revisited a blog post from Tanmay Vora titled Leading and Learning: How to Feed a Community. Now, after my experience with specific COPs over the past 3+ years, Tanmay’s post resonates more clearly with me.

Tanmay Vora Sketchnote – Lisa HanebergHow to feed the community.”

To whom much is given, much will be required.” (Luke 12:48)

“The idea of “to whom much is given, much will be required” is that we are held responsible for what we have. If we are blessed with talents, wealth, knowledge, time, and the like, it is expected that we use these well to glorify God and benefit others.” [BOLD emphasis is mine]

I credit my first awareness of the above thought to Mr. Abe Pollin, the owner of Washington Sports & Entertainment, the organization I worked with from 1996 to 2011. Beyond wealth, we must help others with the other blessings we may receive – such as talents and knowledge. An additional blessing that I am committed to paying forward for the rest of my life is the gift of kindness and support that family, friends, community, and strangers have brought to my family’s lives through my son Ryan’s 27+ five-time battles with cancer. I am forever indebted and grateful for all the gifts in my life, and I will use those gifts to help others.

My twin Don and I love social media – we appreciated the professional potential early on, starting in 2009. Sharing a strong interest in technology and personal development, our careers have emphasized building awareness, skills, and learning across many areas that we then shared in our professional circles and on social media. We strive to enlighten others with the gifts our vision and early adopter tendencies have brought to our lives. In 2018 and 2020, we initiated #TwinzTalk and #TwinsTechTip, respectively, for sharing tips on LinkedIn.

Tanmay’s blog post inspired me to highlight his and his work’s impact on my life. Since our 2016 connection via Twitter, his talent, generosity, and kindness for helping others around leadership and conveying his learning into beautiful digestible sketchnotes have helped sharpen/refine my interest in personal development and my potential for helping others through my experiences and life learnings. Helping others learn and grow their talents is my gift and the purpose of my work. In Tanmay’s blog post, he notes:

Lisa Haneberg, one of my favorite bloggers, wrote about how to feed a community where she said,

If we want to belong to a vibrant community we have to feed it.”

“It became quite clear to me that learning is a social act and we learn the most when we learn together.

In the communities that we choose to belong to (online and offline), we have to do our part in feeding it. It is only when we are generous about sharing our gifts that we build credibility to receive anything meaningful in return…”

Tanmay also mentions Rajesh Setty and his course offering “The Right Hustle,” along with Harold Jarche and his work about Personal Knowledge Mastery. I am connected to Rajesh and Harold and have learned much from them. My interest and action to follow are all thanks to Tanmay’s belief in their work. I am forever grateful and indebted. My responsibility is to pay forward their contributions by helping others in my network.

In May 2020, Seth Godin shared a blog, “A Community of Practice,” that led Terri and I to join a Community of Practice (a separate, more in-depth discussion of this to follow). In addition to the learning community that Don and I have developed via social media, Seth introduced the possibility of joining specific intimate communities that created the potential for greater connection among like-minded, kind, and generous people. Little did we know the magic that would unfold for us, beginning with our initial enrollment in a writing-in-community platform in June 2020! The pandemic and virtual communities of practice collided in 2020, and as Doctor Seuss would say:

“Oh, The Places You’ll Go! You’ll be on your way up! You’ll be seeing great sights!”

–Dr. Seuss, Oh, the Places You’ll Go!

Who feeds your learning, and are you living up to your responsibility to do your part in feeding the community?

Terri and Bill Tomoff with book efforts in Writing In Community community of practice 2020-2021

A Drop of Hope: How a Marrow Transplant Ignited a Lifetime of Gratitude

ChatGPT Highlights of Post

  1. I pause to reflect back on November 3, 2004, a day ingrained in our hearts as we nervously sat in Duke University Medical Center, awaiting the marrow donation that held the hope of a fresh lease of life for Ryan, battling Acute Lymphoblastic Leukemia.
  2. The week of outpatient radiation Ryan endured, wiping out his immune system, only intensified the need for a successful transfusion, each passing moment fueling our prayers for the meticulous execution of the transplant.
  3. Our beacon of hope was Scott Harris, whose altruistic act of marrow donation from miles away in New York was the cornerstone of Ryan’s fight for survival. His selfless act is a testament to the adage that humanity thrives in unity.
  4. Rajesh Setty’s words, “Life-changing gifts deserve a lifetime of gratitude,” resonates deeply with our experiences, encapsulating the essence of thankfulness we foster each day for Scott and many others whose benevolence has been a guiding light in our journey.
  5. The narrative within Terri’s memoir, “The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles,” not only chronicles our voyage through turbulent times but also advocates for the priceless act of marrow donation, urging the reader to explore and share the life-saving potential encapsulated in “Be The Match.”

Our narrative is a homage to the boundless generosity we’ve received and a call to action for others to partake in life-altering acts of kindness, fostering a continuum of hope and lifesaving camaraderie.

Full Reflection (Written November 3, 2023)

Life-changing gifts deserve a lifetime of gratitude.” – Rajesh Setty

November 3, 2004. Nineteen years ago today, my family and I were in Durham, NC, at Duke University Medical Center. Terri Tomoff and my son, sister Olivia’s brother, were with Ryan as we anxiously awaited the marrow donation to be delivered to Duke and prepared for transfusion to Ryan. We all were praying for the successful execution of steps that needed to be taken to provide Ryan with his opportunity for a life-saving transplant. He was waiting in his hospital room after having completed a week of outpatient radiation that eliminated his immune system – his body’s ability to fight an infection was non-existent.

When we experienced Ryan’s 3x wars with childhood cancer (ALL – Acute Lymphoblastic Leukemia), we immediately understood that people need people. Success in the process was not in our control. The realization creates desperation. On this day in November 2004, we all waited anxiously for the necessary steps that had to unfold before delivering the marrow transfusion to Ryan.

We would only learn the specifics a full year later. Still, our donor, Scott Harris, from the New York area, started the morning of November 3rd by going to a local hospital to have his marrow harvested for delivery to Duke, where a ten-year-old boy and his family waited. At approximately 7:45 PM, the transplant was started!

Every day, we carry an attitude of gratitude for Scott Harris and the gift of life that his selfless act provided to Ryan and our family. Yet, on the anniversary, we take an intentional pause and reflect on his kindness, along with the care and compassion of many people and medical professionals who dedicated their efforts to Ryan’s survival. Rajesh Setty’s quote above, which I discovered in his YouTube video, Growing and Changing the World One Thank You at a Time,” could not more perfectly articulate the emotion in our family.

I encourage everyone to watch the video for thought-provoking inspiration and encouragement from Rajesh, particularly from 3:00 to 5:05 minutes, where he references Dr. Howard Hogshead and life-changing gifts.

The list of people I feel heartfelt gratitude for is very long, and we dedicate our lives to helping others, honoring those who have impacted our journey and who ultimately gave the gift of life to Ryan.

In her memoir book, The Focused Fight: A Childhood Cancer Journey: From Mayhem to Miracles, Terri discusses Ryan and our family’s in-depth journey through transplant (Chapter 23 – The Transplant) and the emotional meeting with Scott Harris on November 4, 2005 (Chapter 27 – Can YOU Be The Match?).

As Terri asks with her title of chapter 27 – can you be the match? Please check out and share the critically vital link to Be The Match.

November 3, 2004 – Ryan Tomoff transplant is started at 7:45 PM
November 4, 2005 – Ryan Tomoff meets his Bone Marrow Transplant donor Scott Harris.
July 2021 – Olivia, Bill, Terri, and Ryan Tomoff celebrate Terri’s The Focused Fight book, published March 11, 2021
December 2019 – Olivia and Ryan Tomoff – Maui, Hawaii